Profile cover photo
Profile photo
Benji's Broken Heart
Congenital Heart Defect Survivor! Sensory Processing Disorder Struggling Kiddo
Congenital Heart Defect Survivor! Sensory Processing Disorder Struggling Kiddo


Post has attachment
For those that follow my blog and know me, you are aware that I was born with Coarctation of the Aorta (CoA), Bicuspid Aortic Valve (BaV) with Stenosis, and Patent Ductus Arteriosus (PDA). The CoA was repaired by using my subclavian flap and the PDA was fixed when I was a week old. The BaV was determined to be stable enough to leave so that I could grow and get stronger. I visited my cardiologist every three months, then every six months, and then once a year… up until this past January.

#CHD   #COA   #BAV   #CHDawareness   #1in100   #congenitalheartdefect   #congenitalheartdisease  

Post has attachment
May Heart Checkup... The battle isn't over
As a Congenital Heart Defect (CHD) Warrior, one learns that no day is promised. While today may be a good day, there is no guarantee that tomorrow will be. Interestingly enough, scripture tells us the same thing.  In the last couple weeks, congenital heart ...

Post has attachment
If you had the chance to make a difference, would you do it?
Today you have a chance! Help support me and my friends with Congenital Heart Defects. ( #CHD )
Check out my post and you can get to know me as a #CHDWarrior  a little better and learn how you can help those of us that are #1in100 .  

Post has attachment
It only take one. One in a Hundred!
Dear friends and family, I accepted the challenge of participating in the Congenital Heart
Walk to raise funds for research and programs dedicated to fighting
congenital heart disease—the most common birth defect in the United States.
The Congenital H...

Post has attachment

Post has attachment
New Year, New Checkup, New Results
Hi guys, I'm Benji's mom. Sharing my thoughts right now. Momma's have to process too. Yesterday we went to the annual cardiologist visit. Benji was very tired because he didn't sleep the night before. Schedule changes cause issues with sleep schedules and w...

Post has attachment
In addition to this blog I have created a YouTube Channel.
My channel is Benjachu.

Post has attachment
Final Friday
The last day of school has come and gone for 4th grade. This year has been anything but smooth. Personality clashes, bullying, and lack of desire for school. But positively, new friends, P.A.L.S., and cousins. Fourth grade was hard work.  Math became a prob...

Post has attachment
When Kids Get Hurt
Before we go much further, this situation was taken care of quickly and all parties involved are fine. This is an informative article for parents and teachers to be aware of when a kid gets hurt. We had an incident that happened while Benji was in the care ...

Post has attachment
I skipped school...
The end of the school year brings about all the award parties and the "field day" activities that typical developing kids absolutely enjoy. Many atypical kids do too. My elementary school years have developed a tradition for me. About a week before school g...

#SPD   #ASD    #sensoryprocessingdisorder   #SCHOOL   #FUN  
Wait while more posts are being loaded