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FSHD Lab Rat
14 followers -
Coping with FSHD
Coping with FSHD

14 followers
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Hello World!

My name is Bob.  I've recently genetically confirmed to have FSHD Type 1.  Since I have been diagnosed this condition, I have aligned myself with some of the very best doctors in the world who have been relentlessly pursuing a cure for this and possibly other genetically related disorders.  I have chosen to assist in raising awareness of this form of MD by creating this community along with a Good Places page, and an accompanying blog so individuals either effected or who are involved in making a treatment or cure may be able to effectively communicate their experience and progress in coping with FSHD.

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Thanks Allen for sponsoring this wonderful event.  I look forward to your next one!

https://www.facebook.com/musclepalooza
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Today I ask myself a similar question as Mr. CC:

Is our universe constrained by physical boundaries or is its vastness limited only by the limits of our own imagination, placed upon ourselves?
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Chris once challenged the consensus in his time.  Was the earth truly flat, besieged by serpents, at its outer reaches, never to be tested?
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Oh no!  Not another Xenograft!
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The mission of FSHD Lab Rat is several fold.

1) To raise awareness of FSHD and serve to educate others that may be impacted by this illness.

2) To chronicle my life experiences at it relates to a recent diagnoses of FSHD, after presenting mobility issues at middle age.

3) To share the steps that I'm undertaking to cope with the disease.

4) To drive traffic to the sources seeking a cure and/or assistance in one form or another..

5) To assist those that are working tirelessly to find an effective treatment or cure for others.

6) To facilitate connectivity.

7) To be a positive force of change in the face of adversity and to give more than hope to those searching for some as some very special individuals have already given me.
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