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John Rost
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24 followers
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Chest Muscle vs Body Fat as an Indicator of ICU Survival
If you have been reading along with me for awhile, you know that losing weight has been a large part of my journey.  When I first met my Transplant Team, I was denied the opportunity for a transplant because I had too much body fat.  At my heaviest I weighe...
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Post-Hospital Update
Thursday was my two week post-hospital followup visit with my Team.  The reason I was in the hospital is that the upper lobe of my right lung had collapsed for the second time.  The first tine it collapsed, it re-inflated during a bronchoscopy. The second t...
Post-Hospital Update
Post-Hospital Update
primaltransplant.blogspot.com
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Happy Thanksgiving!
Happy Thanksgiving my friends.  I hope this note finds you warm, happy and feeling well loved. There is so very much to be thankful for. My Sweetie who shares this chapter of our story, my family for supporting and loving us as they do, for the Lord for ble...
Happy Thanksgiving!
Happy Thanksgiving!
primaltransplant.blogspot.com
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My Latest Hospital Stay
Hey all, I know it has been awhile since my last post.  Things have been in a bit of flux and I wanted to wait until I got a bit of stability before posting.  That's not going to happen, so I might as well post away. I had mentioned that my Team wanted me t...
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Going to Ball Games... and stuff
"...why must you live out those songs that you wrote." Hank Jr's been rolling thru my mind of late.  Like Hank, I'm often questioned about some of the things I do when going out and about with my Sweetie.  I like to share our activities on social media, and...
Going to Ball Games... and stuff
Going to Ball Games... and stuff
primaltransplant.blogspot.com
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Stability, A Goal Worth Achieving
My last visit with the Team turned out very well.  For the first time in a good while my Pulmonary Function Testing showed a little improvement.  It looks like the Thymoglobulin treatment has put my chronic rejection on hold.  UTSW has applied to be a part ...
Stability, A Goal Worth Achieving
Stability, A Goal Worth Achieving
primaltransplant.blogspot.com
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Update on Starting Extracorporeal Photopheresis
In my last post I mentioned that my Team wanted me to start  Extracorporeal Photopheresis  (ECP). It turns out that the Centers for Medicare and Medial Services (Medicare) will only cover this treatment for a lung transplant patient as part of a clinical tr...
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Keeping on Keeping on - A New Treatment is in My Future
It's coming on a month and a half (40 days) since I was discharged from the hospital after completing my Thymoglobulin treatment.  I feel great, and was looking forward to today's visit with the Team.  I expected to have confirmation that my lungs were stab...
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A Beautiful Day in North Texas
It was a beautiful day here in N. Texas.  A perfect day for hanging out with my Sweetie and enjoying the art at the Art on the Greene Art Festival .  Oh... if anyone from my Team sees this, no worries.  I was wearing SPF100 sunscreen, that mask is rated N95...
A Beautiful Day in North Texas
A Beautiful Day in North Texas
primaltransplant.blogspot.com
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What's Beautiful in Your World Today?
One of my Twitter friends recently asked "What's beautiful in your world today?" Today, and pretty much since I've been home from my last hospital stay, I'm finding the new growth in my garden to be beautiful.  The plants and flowers make me happy, and give...
What's Beautiful in Your World Today?
What's Beautiful in Your World Today?
primaltransplant.blogspot.com
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