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John Rost
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24 followers
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Going to Ball Games... and stuff
"...why must you live out those songs that you wrote." Hank Jr's been rolling thru my mind of late.  Like Hank, I'm often questioned about some of the things I do when going out and about with my Sweetie.  I like to share our activities on social media, and...
Going to Ball Games... and stuff
Going to Ball Games... and stuff
primaltransplant.blogspot.com
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Stability, A Goal Worth Achieving
My last visit with the Team turned out very well.  For the first time in a good while my Pulmonary Function Testing showed a little improvement.  It looks like the Thymoglobulin treatment has put my chronic rejection on hold.  UTSW has applied to be a part ...
Stability, A Goal Worth Achieving
Stability, A Goal Worth Achieving
primaltransplant.blogspot.com
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Update on Starting Extracorporeal Photopheresis
In my last post I mentioned that my Team wanted me to start  Extracorporeal Photopheresis  (ECP). It turns out that the Centers for Medicare and Medial Services (Medicare) will only cover this treatment for a lung transplant patient as part of a clinical tr...
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Keeping on Keeping on - A New Treatment is in My Future
It's coming on a month and a half (40 days) since I was discharged from the hospital after completing my Thymoglobulin treatment.  I feel great, and was looking forward to today's visit with the Team.  I expected to have confirmation that my lungs were stab...
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A Beautiful Day in North Texas
It was a beautiful day here in N. Texas.  A perfect day for hanging out with my Sweetie and enjoying the art at the Art on the Greene Art Festival .  Oh... if anyone from my Team sees this, no worries.  I was wearing SPF100 sunscreen, that mask is rated N95...
A Beautiful Day in North Texas
A Beautiful Day in North Texas
primaltransplant.blogspot.com
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What's Beautiful in Your World Today?
One of my Twitter friends recently asked "What's beautiful in your world today?" Today, and pretty much since I've been home from my last hospital stay, I'm finding the new growth in my garden to be beautiful.  The plants and flowers make me happy, and give...
What's Beautiful in Your World Today?
What's Beautiful in Your World Today?
primaltransplant.blogspot.com
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Charting Chronic Rejection
A lung transplant recipient has more testing, screening and labs performed on their bodies than anybody else that I can think of.  Our pre-transplant workups, annual screenings, routine labs and follow ups generate a ton of data.  If you've been reading thi...
Charting Chronic Rejection
Charting Chronic Rejection
primaltransplant.blogspot.com
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The Next Chapter
Hi guys.  In my  last post  I mentioned that I was having issues with my new lungs, and asked if all y'all were interested in following along with this part of my journey.  I received some great feedback in the comments to that post, on Twitter, and off lin...
The Next Chapter
The Next Chapter
primaltransplant.blogspot.com
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Quick Update and a Question
It has been a good while since I've posted, and lots has happened since my last one. I did reach the major milestone of celebrating my 3 year transplant anniversary.  Recent Scientific Registry of Transplant Recipients (SRTR) data shows that I'm a member of...
Quick Update and a Question
Quick Update and a Question
primaltransplant.blogspot.com
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Monday Macros - 6/12/17
Monday Macros  Weight = 139. Weight gain/loss this period = 0 lb. Total weight loss = 112 lbs. Macros for the week = Carb/Fat/Prot - 15/58/27%. Daily avg cals = 1,865. Body Fat = 9.6% I tried a couple of food experiments this week.  First was adding bacon d...
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