It would seem that hospice of all places in healthcare would be centered around patients and families yet I found it very frustrating when signing my mother into hospice while she is in Florida and am in Connecticut. First the doctor and I agree it is a good choice, then they place an order for a hospice evaluation. So then the nurse calls me leaves her first name only "Kathy" and gives me a 1800 number to call. Great, I call ask for Kathy and they have no idea who I'm talking about. "Let me pull up her file" she says. 10 minutes later there is a note that they want to meet with me. Yup that makes sense I'm in Connecticut and she's in Florida. I then tell them how I feel about their process and now everyone in the company calls me.
Additionally there are issues with communication between all the players. If the nurse calls me from her cell phone to discuss updates, I am not to call her back on her cell phone or she gets upset. But they don't give another number to call. There is a "bin" they place the patients into which has a number, so you need to call the main number and ask for that number. Then someone pulls her out of the bin to discuss the update that is documented in the notes. Hoping of course that the notes are correct. We wonder why our healthcare is so disjointed. Can we talk to each other at least???
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