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Research Autism
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The preview version of the International Classification of Diseases (diagnostic manual published by the World Health Organisation) ICD-11 has been published and is due for adoption in May 2019. The subsection on autism spectrum disorder is at https://tinyurl.com/y7d3dgjc
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Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD)

Cochrane review found there is weak evidence that EIBI may be an effective behavioral treatment for some children with ASD; the strength of the evidence in this review is limited because it mostly comes from small studies that are not of the optimum design.

Due to the inclusion of non-randomized studies, there is a high risk of bias and we rated the overall quality of evidence as 'low' or 'very low' using the GRADE system, meaning further research is very likely to have an important impact on our confidence in the estimate of effect and is likely to change the estimate.

Full review at http://cochranelibrary-wiley.com/doi/10.1002/14651858.CD009260.pub3/full
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Reviewed and updated our website entry on sleep and autism at http://www.researchautism.net/sleep-and-autism

Best practice guidance stress the importance of drawing up an appropriate treatment plan based on identifying the underlying cause or causes of the specific sleep problems.

Further research is required to examine the impact of poor sleep on people on the autism spectrum and to examine those interventions which appear to be effective.
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Reviewed and updated our evaluation of sensory integrative therapy (aka sensory integration therapy) and autism at http://researchautism.net/sensory-integrative-therapy-and-autism

There is a very small amount of high quality research evidence (five group studies) and a small amount of low quality research (seven single-case design studies with three or more participants) into the use of sensory integrative therapy for children and young people on the autism spectrum. There is one, very small single-case design study which looked at autistic adults.

This research is inconclusive, with some studies finding positive results and some studies finding limited or no results. Because of this we cannot determine if sensory integrative therapy provides any benefits to individuals on the autism spectrum.

There is a need for more research into sensory integrative therapy which uses scientifically robust, experimental methodologies with larger numbers of more diverse participants.

Future research should investigate whether sensory integrative therapy is more or less effective than other interventions designed to reduce or overcome sensory difficulties (such as weighted blankets or therapy balls). It should also investigate whether specific individuals are more likely to benefit from sensory integrative therapy than other individuals.

We believe that a careful assessment of the person’s sensory sensitivities should be carried out by a trained professional before sensory integrative therapy is carried out. That professional should ensure that the therapy follows agreed protocols. They should also define clear outcomes and objectives at the start of therapy and review these on a regular basis.
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An Exploration of How Fathers with Children Diagnosed with Autism Spectrum Disorder Experience Parenting and Support

My name is Kayleigh Belton and I am conducting a research project that explores the experiences of fathers who parent a child with autism spectrum disorder. The project aims to gain an in-depth insight into the issues faced by fathers with the goal of improving the kinds of support available to families.

I am conducting interviews with 10 fathers who do not have a formal diagnosis of autism themselves but parent a child with autism. Each interview will last between 45 minutes to an hour and a half and will be conducted via Skype for convenience.

If you are interested in taking part and are:

Aged 18 or over
The biological father of a child diagnosed with autism who is currently receiving formal support
Married or in a co-habiting relationship
Please contact me at: 100340110@unimail.derby.ac.uk for further information.

For information about other research projects looking for participants please visit http://researchautism.net/take-part-in-autism-research

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Speech, Language and Movement in Children with Autism

We hope to find out more about speech and movement skills of children with autism in Scotland.

What does it involve? The project will use standard medical ultrasound to record the movements of the tongue during speech. We will compare these results to the results of standard assessments of speech, language and movement typically used in clinics.

Purpose: Higher rates of speech errors have been found in children with autism. Information gathered from this study will help Speech and Language Therapists choose effective therapies to reduce the impact of speech errors.

How much time? Two 1-hour research sessions either at the University of Strathclyde, Glasgow or your child’s school (research team will arrange this). Travel expenses to the University of Strathclyde can be reimbursed.

If you are interested in finding out more, please contact Louise McKeever on louise.mckeever@strath.ac.uk or 0141 548 4393

For information about other research projects looking for participants please visit http://researchautism.net/take-part-in-autism-research
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Identifying Early Behavioural Markers for Autism Spectrum Disorder in a High-risk Sample

For a PhD study we are attempting to identify early behavioural signs of autism in order to support early detection and treatment. We are therefore looking for babies between 3 and 12 months old who have an older sibling with a formal

autism diagnosis. We use a method called ‘eye-tracking’ that allows us to see precisely where your baby is looking on a computer monitor when we show them different videos. We are also interested in early, natural interaction and therefore record a short sample of parent-child-experimenter interaction.

We would like to stress that we are not attempting to diagnose your baby. We are exploring babies' preferences and investigating differences between babies.

The study does not take longer than an hour and takes place at The University of Kent, Canterbury. Participating families receive a present.

We would hugely appreciate your help. If you are interested, please email Jolie Keemink (jrk26@kent.ac.uk).

For information about other research projects looking for participants please visit http://researchautism.net/take-part-in-autism-research
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Gender Dysphoria and Autism: The Development of Gender Identity

There has been a recent increase in the number of people with ASD wishing to transgender, and there has been little research to account for why this has occurred. The proposed study aims to investigate gender identity development in males with a diagnosis of ASD and gender dysphoria, and males with a diagnosis of ASD alone. We aim to explore gender identity development by asking males in these two groups how they think their gender identity developed.

I will ask participants to engage in semi-structured interviews regarding their gender identity development across the lifespan. They will also be asked to complete two tasks relating to how they feel about their bodies and what their social circles look like. The aim of these topics is to build rapport and assist in exploring sensitive topics.

The researcher will be happy to interview you at the National Autistic Society base if there is a room available, or at the Tavistock Gender Identity Clinic in London. Participants will be given a £10 Amazon voucher for their participation in the study.

If you wish to know more about the study, or would like to be involved, please contact Laura Fisher on l.e.fisher267@canterbury.ac.uk

For information about other research projects looking for participants please visit http://researchautism.net/take-part-in-autism-research
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Medical therapies for children with autism spectrum disorder: An update. https://tinyurl.com/ybxt4zpx openaccess This comprehensive review looks at medications, medical procedures, diets and dietary supplements & suggests more research is needed in some areas inc. long term effects
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