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C O'Reilly
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New puppy care is vital.  Your new puppy is a wonderfully fresh blank page. This is your chance to shape your puppy into the dog you want him to be. Puppies don't start out with separation anxiety ...
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The time for talking is over. Action on #disability  and #specialneeds  services is needed now!
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Quality of life and #autism  
Quality of Life can mean a lot of things to society as a whole. For most people, it means a good job, nice house and car, family and money for luxuries, and then you are pretty much all set - right?... Continue Reading QUALITY OF LIFE: What does it mean when your child has Autism?
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Letter sent to The Irish Times today about disability services for adults:

Dear Sir,

As the mother and carer to a disabled young adult I am also delighted that we now have a Minister for Disabilities with additional money to spend, and a strong disability advocacy movement that is changing perceptions of disability, and fighting to achieve change in the way that people with disabilities live their lives.
However I am concerned that the interests of a small group – the 5000 or so with severe and profound needs – are being ignored.

Apparently it is not politically correct to say so, but it is unlikely that people like my daughter will ever be able to “control their own lives” (Professor Quinn's letter of June 13th). They need constant care, specialist or customised equipment and services, often have huge and complex medical problems and very limited expressive communication – unable to speak intelligibly and may not be able to point, use an iPad or choose from pictures either.

But they should also have the right to a “Good Life” as described in HSE policy documents. And right now they are being excluded from the conversation.
Currently my daughter attends a wonderful mixed ability two year day programme at the Central Remedial Clinic and she appears very happy with this: the CRC is a lively place with a host of facilities and activities that meet her needs, and she while she has very severe disabilities, she is very sociable and has made many friends.
But apparently under the HSE's New Directions policy she has to go into the community next year, a community that does not have the facilities to cater for her needs. Apart from coffee shops, lots and lots of coffee shops. And what sort of a life will that be for her? New Directions also expects additional unpaid support from family and friends. That means me. At the same time no new respite places are to be provided so no breaks will be available, no possibility of holidays, getting a job, or even going into hospital if I get sick. The talk is of community respite, but where are the families willing to provide 24/7 care and the expertise and equipment to be able to provide it?
I hope that my daughter to be able to live with me until I can't care for her any more. But without good support and services that day will come sooner rather than later. And then what will happen to my daughter under this new community focused policy? No-one will give me a straight answer. And I wonder is that because the only option will be an institution, since nothing else is to be put in place. It will not be one of the terrible residential facilities that have featured in the media, because thankfully they are to be closed. I imagine it will be a different type of institution: perhaps a hospital or a nursing home or a community home with care workers. But will that be any better or safer?
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Free: Mighty Mac App & Utility Bundle, Catch a Free Ride to Mac Excellence with 10 Apps That Improve Performance & Productivity
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Teenage moods and #autism  
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I just signed! #WithStrongGirls
Show girls and women everywhere you're on their side. Sign the petition now!
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Another new blog: this family had one child diagnosed with ‪#autism Now they have three.
How the hell did I get here, how??????? Suppose I can only start from the now and work backwards as I need to remind myself let alone explain it to yee. Today May 7th 02.18am, yes 2 am, ffs what the hell am I doing awak...
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Autism and growing up: Back to Basics. Again. http://autismandgrowingup.blogspot.com/2015/04/back-to-basics-again.html?spref=tw <<When it's hard to celebrate #autism    awareness. Via @autismgrowingup #WAAD  
Easter break hasnt been good.  The issues we've had before have intensified and become more stressful, probably due to lack of routine. Hormones aren't helping because its harder for him to control all of his emotions at once...
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Wonderful clinic, staff helpful and professional, premises is spotless and welcoming, parking is on-street, but free and there's always spaces. Appointments are on time and you always leave with useful information. They also take credit cards, which is very handy!
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