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Key Lyme Pie
54 followers -
Living with Lyme and Co in the Northeast US.
Living with Lyme and Co in the Northeast US.

54 followers
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Running with Heart Block
so a ,to of you k one, I’m a competitive runner despite my chronic illness (Lyme and autonomic neuropathy). I often have major issues with sudden hypotension mid-run and several issues with heart rate. I’m paced by a Biotronik pacemaker nearly 100% of the t...

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Update: The Stress of Being a Young Adult Zebra
So once again I’ve been MIA on this blog for a long time. Sadly it’s not because I’m better or healed. I returned to write out my anxiety because I’m overwhelmed once more. Many people and doctors don’t realize that immense struggles that come along with ch...

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Mepron Week 2: EXTREME anxiety
Well I made it through my 2nd week of Mepron and Zithromax, but I'm not doing well. I have over-the-top anxiety and insomnia. I haven't slept for more than 2 hours for the past week. I've tried valerian, hops, l-theanine, GABA, lavender, lemon balm, passion...

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Quality of Life vs. Longevity
I had a pacemaker follow-up the other day. As I predicted, my ventricular pacing, a measure of how much time I spend in heart block or pausing has doubled again from 13% to 30%. There are days that I pace in the ventricle 50%. Ventricular pacing over 40% ca...

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Compassionate, Doctors that Listen Make a Tremendous Difference
I've been put through the ringer with doctors since getting sick 3 years ago. I've had doctors tell me there is nothing wrong with me, there's nothing I can do about my symptoms and that I can't understand anything they have to say because I don't have MD a...

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My First Experience With Rocephin
Well I'm going on almost 4 years since my initial infection. The infection that has pretty much ruined my life in all ways: health, career, emotions, personality, financials, etc. My heart over the past several months has continued to worsen. The good thing...

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Fainting Isn't Always POTS!
So this will likely be a controversial post since I know a huge number of people in both Lyme and dysautonomia communities have been diagnosed with POTS......... POTS stands for postural orthostatic tachycardia syndrome. By definition, it is a rise in heart...

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What is getting a mediport like?
So I got my first Mediport about 6 months ago. I don't have it for Lyme. I have it due to severe autonomic dysfunction to use for IV saline to support my BP. I have no intrinsic control of hypotension anymore. A port is a device about the size of a dime (bu...

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What is getting a mediport like?
So I got my first Mediport about 6 months ago. I don't have it for Lyme. I have it due to severe autonomic dysfunction to use for IV saline to support my BP. I have no intrinsic control of hypotension anymore. A port is a device about the size of a dime (bu...

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Imagining
It's been a really really long time since I've written anything for this blog. Sadly, it's not because I'm feeling any better and have moved on or cured myself from Lyme or autonomic dysfunction. The past several months have been a health roller coaster for...
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