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Kim Oakley
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Autism Mom and Advocate.
Autism Mom and Advocate.

10 followers
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Crazy food combinations that can get some people with autism to eat, sometimes.....Anyone living with autism knows this is a constant battle, so here's some autism friendly food combination ideas.

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Kim Oakley commented on a post on Blogger.
Perhaps patents of school aged kids should push for a bill that mandates any school that accepts a voucher for a special needs child must provide needed assessed services. And mandate that each private or non public school accept a certain percentage of mild to severe special ed students.

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More Transdermal Drug Delivery Options Needed for People with Severe Autism and other Special Needs.

Few studies on medication non-adherence acknowledge the realities of caregivers and parents dealing with severely autistic children/patients who either have difficulty swallowing medications (dysphagia) or have sensory/behavioral reasons to refuse traditionally, routinely prescribed oral medications.

People with severe autism often resist taking oral or liquid medications.

For many reasons. One is sensory related: Gustatory-taste issues (presenting as closing mouth, refusing to open mouth). Others are olfactory-smell related, insistence on sniffing pill, throwing or smashing it. Another reason may be prior memory of unpleasant gastrointestinal side effects (presenting as avoidance behavior, turning head, screaming, biting medication, running away).

*Applied Behavioral Therapy can address some of these medication non-adherence issues, but can't resolve a medically based (dysphagia) with behavioral component issue.

*People with severe autism often depend on others to give them medications.

*You can't shove pills down someone's throat if they don't want to take pills. And you certainly don't want to try this on a person with severe autism. It's cruel. It's insane. It's unnecessary in a day and age where we have TRANSDERMAL TECHNOLOGY.

Medication non-adherence behavior leads to higher risk of aspiration (risk of choking) during medication administration.

* Medication non-adherence leads to worsening of health, elevated caregiver and parental stress and overall risk of injury to everyone involved, during hostile medication administration.

*If you are a parent of a severely autistic person, you might already know that the thought of a Transdermal Patch is a dream come true. Have you ever had a 6'1'autistic patient/client overturn a table when they didn't want to take their meds? Spit the medication on the floor and step in it? Nearly choke resisting swallowing it? Or having genuine difficulty swallowing the pill? Or start punching themselves? Not fun. Not safe. Crazy.


*There are currently 19-20 FDA approved medications (i.e..fentanyl, nicotine, clonidine, Vit. D, nitroglycerin, various hormones, etc...) that come in transdermal drug delivery form.

*None are anti-epileptic drugs (AEDs).

*25%-30% of people with autism have epilepsy.

*None, besides RX Clonidine and Vitamin D, are medications typically prescribed to people with autism.

*People with autism aren't the only patients who could benefit from Transdermal Drug Delivery.

*Dysphagia and medication non-adherence behavior leading to aspiration occurs in the elderly, in patients with Parkinson's, Dementia, Stroke disease and medically fragile people when taking ORAL medications.

*Transdermal Drug Delivery could improve the health of many people who have difficulty swallowing oral or liquid medications.

*Transdermal Drug Delivery could save millions in health care costs by insuring people are taking prescribed medications to improve their health and quality of life

*Transdermal Drug Delivery could avoid physical and mental stress/behavioral meltdowns/overall chaos/screaming fits that can ensue when trying to get a person with special needs to take necessary medication. No doubt those who work with people with brain injury or dementia have experienced such stressful situations.

How great would it be to avoid all of the aforementioned risks and stress with Transdermal Drug Delivery.

Perhaps Trump Administration will encourage USA based pharmaceutical providers to invent and provide more Transdermal medications, as cost effective and life enhancing health care assets.







CA Laws to remember when advocating for people with autism and other special needs.

WELFARE AND INSTITUTIONS CODE
SECTION 4500-4519.7

4500. This division shall be known and may be cited as the
Lanterman Developmental Disabilities Services Act.

4500.5. The Legislature makes the following findings regarding the
State of California's responsibility to provide services to persons
with developmental disabilities, and the right of those individuals
to receive services, pursuant to this division:

4501. The State of California accepts a responsibility for persons
with developmental disabilities and an obligation to them which it
must discharge. Affecting hundreds of thousands of children and
adults directly, and having an important impact on the lives of their
families, neighbors, and whole communities, developmental
disabilities present social, medical, economic, and legal problems of
extreme importance.

The complexities of providing services and supports to persons
with developmental disabilities requires the coordination of services
of many state departments and community agencies to ensure that no
gaps occur in communication or provision of services and supports.

The Legislature finds that the mere existence or the delivery of
services and supports is, in itself, insufficient evidence of program
effectiveness. It is the intent of the Legislature that agencies
serving persons with developmental disabilities shall produce
evidence that their services have resulted in consumer or family
empowerment and in more independent, productive, and normal lives for
the persons served.

It is further the intent of the Legislature
that the Department of Developmental Services, through appropriate
and regular monitoring activities, ensure that regional centers meet
their statutory, regulatory, and contractual obligations in providing
services to persons with developmental disabilities.

4502. Persons with developmental disabilities have the same legal
rights and responsibilities guaranteed all other individuals by the
United States Constitution and laws and the Constitution and laws of
the State of California.

It is the intent of the Legislature that persons with
developmental disabilities shall have rights including, but not
limited to, the following:

(a) A right to treatment and habilitation services and supports in
the least restrictive environment.

(b) A right to dignity, privacy, and humane care.

(c) A right to participate in an appropriate program of publicly
supported education, regardless of degree of disability.

(d) A right to prompt medical care and treatment.

(e) A right to religious freedom and practice.

(f) A right to social interaction and participation in community
activities.

(g) A right to physical exercise and recreational opportunities.

(h) A right to be free from harm, including unnecessary physical
restraint, or isolation, excessive medication, abuse, or neglect.




Interesting Bill.

SB 1221 (Hertzberg D) Firefighters: interaction with persons with mental disabilities.
Current Text: Chaptered: 9/14/2016

Location: 9/14/2016-S.

Summary: Current law requires the Commission on Peace Officer Standards and Training to establish a continuing education classroom training course related to law enforcement interaction with mentally disabled persons and to make the course available to law enforcement agencies in California.

This bill would require that the course be shared with the State Fire Marshal and would authorize him or her to revise the course, as specified. The bill would delete an obsolete reporting requirement and make a conforming change.
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