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Muscular Dystrophy Canada
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Health Canada has already developed the Orphan Drug Regulatory Framework and announced it in 2012. It is ready to go. Unfortunately, it has never been published and approved.

Please join us in signing this Canadian Organization for Rare Disorders petition, and asking the Minister of Health, the Honourable Rona Ambrose, to continue Canada's leadership in healthcare and approve the Orphan Drug Regulatory Framework.
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The five stories for April have been added to the 60 Years of Progress puzzle! Check them out here: http://bit.ly/1pVtHhF
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Read up on some great Muscular Dystrophy Canada volunteer stories!

George Brinton: a volunteer of 15 years http://bit.ly/1i4Kixl

Helmer Reddick: a Fire Fighter who has been with us from the very start http://bit.ly/1eoj99A

Mary Ann Wickham: our very first volunteer, and the foundation of the services department http://bit.ly/1qe0aOH

Ken Killen: a Fire Fighter volunteer whose daughter, Debra, is now a board member http://bit.ly/1mUaYEm
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Find out what Empowerment In Action 2014 has in store for you, and hear what Michaela Evans had to say about the last summit:
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Do you have a question about neuromuscular research? Just ask!
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Have them in circles
569 people
IWAIN LIZAN CRIS's profile photo
Jose Luis Rios's profile photo
Pramod Palaparti's profile photo
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Scott McElreath's profile photo
iSTAR Project's profile photo
Hsiu-Hsiung Tai's profile photo
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Health Canada is currently working on drafting a National Orphan Drug framework. Currently, Canada has no Orphan Drug Policy.

Learn more about the new development:
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Luca Patuelli (lazylegz) became a National Muscular Dystrophy Canada Ambassador in 2011, and he's going to be at #EIA! Check out what happened at the last summit:
28 year-old Luca “Lazylegz” Patuelli, professional B-Boy (Breakdancer) and motivational speaker lets us in on his life for a day.  Read ahead as the national ambassador for Muscular Dystrophy Canad...
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New blog post! See what Lindsay Ell has to say about being a part of her friend's - who is affected by muscular dystrophy - support group, and listen to the song Lindsay wrote for her:
I saw Lindsay Ell - an amazing performer from Calgary, Alberta - perform for the first time as one of the opening acts for The Band Perry in Oshawa, Ontario. As soon as she said the words, “muscula...
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Every child deserves a rewarding and comfortable school experience. Part of the HOP for Muscular Dystrophy’s purpose is to promote compassion and inclusive school communities.

For more information about how to foster inclusive education for students with neuromuscular disorders, refer to our teachers' resource guide:
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It’s National Volunteer Week! Volunteers are essential to Muscular Dystrophy Canada. Find out how to make a big impact in a short amount of time:
60 Minutes. 1 hour.  It doesn't sound like much, but a great deal can be accomplished in that time.  You could watch an episode of Glee, play a house league soccer game, take a pottery class or pra...
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Have them in circles
569 people
IWAIN LIZAN CRIS's profile photo
Jose Luis Rios's profile photo
Pramod Palaparti's profile photo
Olaf Falk's profile photo
Scott McElreath's profile photo
iSTAR Project's profile photo
Hsiu-Hsiung Tai's profile photo
Susan Tambone's profile photo
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18666872538
Story
Tagline
Muscular Dystrophy Canada's mission is to enhance the lives of those affected by neuromuscular disorders.
Introduction
Muscular Dystrophy Canada is a not-for-profit organization committed to finding a cure for neuromuscular disorders through well funded research.