I quit all my meds (with doctor's guidance) except I still take some Plaquenil.
I still have symptoms of lupus, but I realize that many of the drugs I was taking, were causing my symptoms to become more severe. The pain and fatigue are still existent but not nearly as debilitating as they had become.
I also realize that I may need medication yet again someday, but for now, at 40, this is a good thing for me. It has been an adjustment the past few months as some of the medication helped in other ways. I am now finding I can balance it with vitamins and nutrients too.
I may still have to reach for an anti-anxiety med or some OTC pain killers, but it will be a long time before I agree to take anything like that on a daily basis again.
I believe most doctors really do not want to do more harm than good to your symptoms, but sometimes it is unclear as to what is causing what when you take meds for years at a time.
Once I stopped the meds I can clearly see and state which symptoms are because of a lupus flare or other autoimmune issue. It may not be that way for everybody, but for me I'm glad I gave it a shot.
Now to just get it through people's heads that when I say I am doing better, I mean doing better that being unable to get out of bed. This does not mean I am ready to go spend the day hiking in dry 90 degree weather, nor would that be wise.
I also want to add that when I started each medication they seemed to help, it took a while for them to become less effective and the side effects gradually got worse. Just something to pay attention to while we try to get better medications for lupus patients.
HOA invites, Autobackup management, YouTube Migration to Brand Page
Hey everyone! Time for the latest Google+ Help Weekly Round-Up where the top trending questions of the week are answered!
I chose the three examples this week because their use cases are interesting, and they’re real life situations you might run into. I encourage everyone to look through the discussions in this community, since there’s a lot of great stuff this week..
1) Have you ever scheduled an HOA and had a hard time sending out invitations to specific recipients? was having this problem sending invites from his Brand Page.
, , and came to the rescue with lots of advice on how to manage invitations to viewers as well as on-air guests.
See the full post here: https://plus.google.com/+RichBaxter/posts/DVm6LFKPbBN
2) If you do a lot of phone photography & video and use auto backup, have you ever wanted to free up some of the space on your phone? +Virginia Walker asked about that, and weighed in with a story about losing photos. described how to tell whether something’s fully backed up, and how to delete an item on a mobile device only.
See the full post here: https://plus.google.com/107090474088444653336/posts/eGk3oyeNEFP
3) +The Gods of Wheat Street wanted to change their profile name to their actual company name: Every Cloud Productions, and associate their YouTube channel to that. recommended setting up a Brand Page and then moving their YouTube channel over to it. It may or may not be true in this case, but a lot of profiles do get created directly from existing YouTube channels. Eventually the owners discover Brand Pages, and end up wanting to do this kind of transfer.
See the full post here: https://plus.google.com/112226976036384953745/posts/KtpjkesdM8X
► Tip of the Week
What is Muting and what is Blocking, and when would you want to do which?
provides excellent guidance, and even goes into how to make the Google+ Abuse Team aware of extreme problems: https://plus.google.com/u/0/+JohnSkeats/posts/DtFHYNHTRtX
► Bonus Tip of the Week!
posted an awesome list of common Google+ pitfalls. These are especially worth going through if you’re relatively new to the platform:
Thanks everyone for all of your questions and insights this week, and special thanks to everyone who helped respond to these trending topics. Make sure to check back again next week when will help highlight the best questions and answers on the community.
#weeklyroundup #googleplusprotip #besthelpontheweb
THE HOPE FOR SO MANY TO BE ABLE TO COMMUNICATE WITH THEIR FAMILY AND MAKE FRIENDS WITH STRANGERS IS RIGHT IN FRONT OF THEIR EYES THROUGH THIS
*EyeSpeak Beyond Communication*
Thank you for bringing this to my attention In need of a double Lung Transplant I know what it's like being limited in what I can do, I'm extremely thankful for my voice and the ability to move.
Thank you sharing this post so many can see it and keep the cycle of sharing going. *HELP CHANGE MANY LIVES+
LISTEN TO THE LYRICS AND ENJOY
IT'S DUE TO AND KARENS SUDDEN NEED TO GO FOR A WALK THIS IMPROMPTU ADVENTURE TOOK PLACE.
*I CAN'T THANK THEM ENOUGH*
As Karen took us for a walk along the river it felt like we were walking along right beside her, at least it did for me.
If you watch the video to the end you'll hear I was able to not only laugh and talk with Karen but also direct her cell phone to get some AMAZING photographs through the hangout camera app. I will share them over the next few days.
Karen took a few folks for a walk along the river, while talking a few photos and talked about cameras.
It was a fun time for everyone and totally unplanned.
Karen just phoned up to say she was going for a walk and and would love to take vpw.org along. It's that easy to, Walk the walk for those that can't. It continues to amaze me that the busiest people find time to help us and give the gift of their time. Thank you
Visit www.virtualphotowalks.org for more info.
Today's Virtual Photo Walk was powered by and the 4G LTE Jetpack Mobile Hotspot and a HTC one
- I don't work I'm waiting to be tested to see if I can go on the lung transplant list.present
- school in the UKGRADUATED MANY MANY YEARS AGO AT 16
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