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Sarah Kathryn Frey
1,165 followers -
A 25-year-old girl fighting chronic illness with her superhero service dog. She finds hope and optimism through Christ.
A 25-year-old girl fighting chronic illness with her superhero service dog. She finds hope and optimism through Christ.

1,165 followers
About
Sarah Kathryn Frey's posts

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Hi, friends! 🐶💋 It's been a little while, huh?

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Heading into the operating room at any moment. Please pray for pain control and courage!
#prayersplease #digestivetractparalysis

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I would so very much appreciate it if you would take the time to read about my superhero, Dr. Robert Arceci. Having Dr. Arceci in my life was such an indescribable blessing, but I did my best to put that blessing into words anyway. I never could have thanked him enough during his time here on earth. So Jesus, please share this post with Dr. Arceci in heaven!

#arceci #myhero #childhoodcancer #histio #hlh

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Hi friends! I could greatly use your prayers, as I have found myself in a bit of an emergency once again. I will be having surgery at 2:30 today. Please pray for a paralysis-free surgery with the sweetest of sugarplum dreams! I am hoping it's one of those days I awaken believing that I am Audrey Hepburn, if you like specificity when you pray!



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Thank you for your prayers, friends! I am happy to report that I am stable enough to return home. #hlh #prayersplease #histio

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Update from the PICU. Hemophagocytic Lymphohistiocytosis (HLH) is a brutal disease... Thank you ever so much for keeping me in your prayers.

#hlh #histioaware

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Hello friends! I am very sick in the hospital right now, I would greatly appreciate your prayers. We aren't certain what is going on,, but we have a scary suspicion that my Hemophagocytic Lymphohistiocytosis (HLH) is flaring.. God bless you!

#pleasepray #hlh #histioaware #chronicillness

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Wow! What a crazy week! And it's about to become even crazier! Here is a blog post with all of the details. Could you please pray for me as I embark upon my next adventure? Thank you, friends!

#itsoctoberthird #rsd #crps #prayersplease

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For the final day of Histiocytosis Awareness Month, I wanted to share this blog post that I wrote last year. Hemophagocytic Lymphohistiocytosis (HLH) is a very scary disease that receives far too little recognition. Oftentimes by the time a person receives a diagnosis, it is too late. We need to raise awareness to save precious lives!

#histoaware #hemophagocyticlymphohistiocytosis #hlh #histiocytosis 

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My very first diagnosis in my journey was Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome (RSD/CRPS), a chronic neurological pain condition. At age 13 I still looked like the same happy, peppy, sassy Sarah Kate in my darling little Abercrombie skirt; but on the inside, I was fighting to deal with this new sensation of an ever-present burning flame that threatened to bring me to tears if only I would give into it.

National Chronic Invisible Illness Awareness Week was observed earlier this month. Over the years my illness has become more obvious to a casual observer, but from the early days of my chronic battle I poignantly remember the challenges posed by the mere fact that my illness was largely invisible. And because of those painful memories, I feel compelled to speak up for myself, for my friends, and for the many silent sufferers of invisible illness.

Thank you for helping me raise awareness by reading my story!

#invisibleillness #invisibleillnessweek
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