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Huntington's Disease Society of America
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The Huntington’s Disease Society of America will offer its annual web based Clinical Trials Diplomat Training on March 6, 2012 at 1:00 p.m. EST (noon CST/10:00 a.m. PST).
The training will be conducted by Dr. Sam Frank, a clinician in the HD clinic at Boston University, and will last approximately 60-90 minutes with time for q/a at the end.
The HDSA Clinical Trials Diplomat Program brings members of the HD community together to start a conversation about clinical trials with other family members. Diplomats are volunteers, usually people who have participated in a clinical trial or observational study OR the spouse of a participant, who believe that clinical research is important to advancing treatments and a cure for HD.
Volunteers are trained by HDSA to provide information and answer questions about clinical trials in small group settings such as at support group meetings. Diplomats are not expected to be experts in the clinical trial process. Any question that can’t be answered can be directed to HDSA for a response.
If you would like to participate in this exciting webinar on March 6, please register at https://www2.gotomeeting.com/register/335739458
Please contact Deb Lovecky at Dlovecky@hdsa.org if you have any questions.
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CINDY FRANCIS's profile photo
 
I am Cindy Francis from Marshall, TX. I lost my oldest brother to Huntington's at the age of 39 in 2004. He lost his son  to the disease at the age of 19 , three yrs.ago. I have a brother at the age of 42. I have concerns with him getting the mutating gene. My dad is dying with Huntington's. He is 72. I am 47 yrs. old and do not have children. This disease has really taken atoll on my family. Seeing what Huntington's has done and doing to my family has weighed heavy in my heart for years. I need a support group to help give me insight and strength thru my crisis. I do welcome any and all support that you can offer. It will be very appreciated. Thank you.
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We are a national non-profit voluntary health agency dedicated to finding a cure for Huntington's Disease.
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