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Randi Zaila
21 followers
21 followers
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Light
One of the most important lessons I have learned while being part of Sonya's story is that moment to moment everything can change and without warning.  One minute we were celebrating seizure freedom and the next we had the seizure tracker app opened and the...
Light
Light
sonyasstory.com

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Recovery
Recovery
sonyasstory.com

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Hollow
Hollow
sonyasstory.com

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Sonzee's Spa
Sonzee's Spa
sonyasstory.com

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Given
Last night I heard one of the most heartbreaking stories that happened to another person and their family.  It made falling asleep even more challenging for me, and that is typically not one of my strengths in general.  While texting with a friend, my mind ...
Given
Given
sonyasstory.com

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1 in 46,000
1 in 46,000
sonyasstory.com

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1 in 46,000
One of Sonzee's CDKL5 sister's mom created the image above.  I saw it circulate in our parent support page about 4 days ago and to be honest I kept scrolling.  I am unsure what deep rooted psychological reason it might be due to, but the "easy" answer is ju...
1 in 46,000
1 in 46,000
sonyasstory.com

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But then...
More times than I care to recount in the past 3 years I have made a "prayer request" post for one of our CDKL5 siblings or their family as they were in the hospital, on hospice, or already passed.  The topic no one wants to openly discuss but that every par...
But then...
But then...
sonyasstory.com

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Wonder
Last night we went to a BBQ for dinner.  Our friends have so many toys and a huge backyard playground, so it was about 5 seconds after we arrived that the kids disappeared.  The weather was actually perfect for Arizona conditions, which meant we were going ...
Wonder
Wonder
sonyasstory.com
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