Profile

Cover photo
Molly's Fund Fighting Lupus
348 followers|207,880 views
AboutPostsPhotos
Story
Tagline
Molly's Fund Fighting Lupus is a non-profit dedicated to educating the public and the medical community about lupus.
Introduction
Molly's Fund Fighting Lupus is a non-profit dedicated to educating the public and the medical community about lupus. We are working to push for earlier, life-saving diagnoses for those afflicted, and to spur funding for research toward a cure. Located in the Pacific Northwest, we are slowly branching out to people beyond Portland, Seattle and Boise. Our goal is to touch a million lives by the end of 2012. 
Contact Information
Contact info
Phone
503-775-3497
Fax
503-775-5365

Stream

 
FACT: 10% of those suffering with lupus are men. That means that in the U.S. alone, approximately 150,000 men suffer with this debilitating disease. Men with lupus, what has your experience with lupus been like? www.MollysFund.org
1
Add a comment...
 
Meet Brandi, who shared her inspiring Story of Hope with us at Molly's Fund Fighting Lupus. Please like and comment to show Brandi your support and let her know that she is not alone! To read more stories or to share yours, go to http://www.mollysfund.org/learn-about-lupus/stories-of-hope/
1
Add a comment...
 
FACT: The cause of lupus is not known. Research suggests that genes play an important role but genes alone do not determine who gets lupus. Does lupus run in your family? www.MollysFund.org
1
Add a comment...
 
QUESTIONS of the WEEK: Brenda asks, "I started to hurt in my chest which scared me, I usually don't have chest pains. I also have RA and along with swollen joints my ribcage was sore. Has anyone else had this happen?" And Adelina asks, "I was wondering if any other lupies have ever experienced flare ups as a result of blood pressure medications?" Please help Brenda and Adelina with your suggestions and comments! www.MollysFund.org
1
Add a comment...
 
Meet Rewaa, who shared her inspiring Story of Hope with us at Molly's Fund Fighting Lupus. Please like and comment to show Rewaa your support and let her know that she is not alone! To read more stories or to share yours, go to http://www.mollysfund.org/learn-about-lupus/stories-of-hope/
1
Add a comment...
 
FACT: Lupus is an autoimmune disease that causes the immune system to turn on itself, attacking healthy cells. This causes debilitating and even deadly symptoms throughout the entire body. What are some of the hardest things to communicate about autoimmune diseases for you? www.MollysFund.org
1
Add a comment...
Have them in circles
348 people
Gilly Crews (CraftyCatsCorner)'s profile photo
Skip To My Lupus, Inc.'s profile photo
Tee Babie's profile photo
Lupisor L.'s profile photo
Lori Marks's profile photo
Anna Smith's profile photo
Chad DelMain's profile photo
Valicia Thomas's profile photo
Erin Davis's profile photo
 
What is a rheumatologist? What should I bring to my first appointment? What kinds of questions should I ask? We write about what to expect when you are expecting a lupus diagnosis and more on our blog: http://www.mollysfund.org/2015/08/your-first-visit-to-the-rheumatologist/
Contents: What to Expect When You Are Expecting…A Lupus Diagnosis What is a Rheumatologist? What to Bring What to Ask? The Physical Exam Tips on Having a Successful Visit Wrapping it Up   What to Expect When You Are Expecting…A Lupus Diagnosis By this time you are probably feeling like a bug smacking a windshield... Read more »
1
Add a comment...
 
QUESTIONS of the WEEK: Joyce asks, "My daughter calls prednisone my 'crabby pills' because it makes me really cranky and I go off on people for any little thing! Does anyone else have this reaction?" And Gwendolyn asks, "Hello everyone. I have lupus and all of its usual friends (fibromyalgia, Sjogren's, etc.). Summer is my usual down time, and my doctor suggested a change in medication. I'm currently on Fentanyl, Oxycontin DR, and Oxycodone IT for pain. He suggested that I stop ALL Oxys and start on Methadone. Have any of you faced this decision? Pros, cons? I would really appreciate hearing from you. Be Well. ;-)" Please help Joyce and Gwendolyn with your suggestions and comments! www.MollysFund.org
1
Add a comment...
 
Meet Mike, who shared his inspiring Story of Hope with us at Molly's Fund Fighting Lupus. Please like and comment to show Mike your support and let him know that he is not alone! To read more stories or to share yours, go to http://www.mollysfund.org/learn-about-lupus/stories-of-hope/
1
Add a comment...
 
FACT: The American College of Rheumatology established 11 criteria for classification of Systemic Lupus Erythematosus (SLE). At least 4 of them need to be present for a possible lupus diagnosis. Which these symptoms have you had the best luck battling? www.MollysFund.org
2
2
Christy Osteen's profile photochelsea stark's profile photo
Add a comment...
 
QUESTIONS of the WEEK: Ashleigh asks, "I've been getting really dizzy and have severe migraines. I have lupus and am on Plaquenil, Solone, and Endep for the migraines. I'm just feeling so exhausted and tired. Is that part of lupus?" And Laura asks, "Trigger finger is a new thing I have to deal with. Mostly just first thing in the morning, maybe 4-5 days out of the week. Anyone else?" Please help Ashleigh and Laura with your suggestions and comments! www.MollysFund.org
1
Add a comment...
 
Meet Amanda, who shared her inspiring Story of Hope with us at Molly's Fund Fighting Lupus. Please like and comment to show Amanda your support and let her know that she is not alone! To read more stories or to share yours, go to http://www.mollysfund.org/learn-about-lupus/stories-of-hope/
1
Add a comment...