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Molly's Fund Fighting Lupus
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Molly's Fund Fighting Lupus is a non-profit dedicated to educating the public and the medical community about lupus.
Introduction
Molly's Fund Fighting Lupus is a non-profit dedicated to educating the public and the medical community about lupus. We are working to push for earlier, life-saving diagnoses for those afflicted, and to spur funding for research toward a cure. Located in the Pacific Northwest, we are slowly branching out to people beyond Portland, Seattle and Boise. Our goal is to touch a million lives by the end of 2012. 
Contact Information
Contact info
Phone
503-775-3497
Fax
503-775-5365

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QUESTIONS of the WEEK: Renee asks, "Any ideas for dealing with or minimizing the appearance of the bright red butterfly rash on my face?" And Nicole asks, "I feel like my blood boils or like I'm on fire. I also get knots on the back of my neck and head. Anyone else?" Please help Renee and Nicole with your suggestions and comments! www.MollysFund.org
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Meet Paula, who shared her inspiring Story of Hope with us at Molly's Fund Fighting Lupus. Please like and comment to show Paula your support and let her know that she is not alone! To read more stories or to share yours, go to http://www.mollysfund.org/learn-about-lupus/stories-of-hope/
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FACT: In March 2011, Benlysta became the first FDA-approved lupus drug treatment in over 50 years. What can you do to support research for more effective treatments for lupus, and ultimately, a cure? www.MollysFund.org
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QUESTIONS of the WEEK: Gurpreet asks, "I've had SLE and APS for the past 10 years, and am also suffering with unexplainable vertigo. Does anyone else have this?" And Vanessa asks, "I was wondering if anyone else suffers from BME (bone marrow edema). If so, what are some of the treatment plans that their doctor has provided them with? Also, is it related to lupus or all its own?" Please help Gurpreet and Vanessa with your suggestions and comments! www.MollysFund.org
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Meet Brenda, who shared her inspiring Story of Hope with us at Molly's Fund Fighting Lupus. Please like and comment to show Brenda your support and let her know that she is not alone! To read more stories or to share yours, go to http://www.mollysfund.org/learn-about-lupus/stories-of-hope/
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FACT: Lupus is not contagious, you cannot "catch" it or "give" it to someone. Good to know! www.MollysFund.org
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Have them in circles
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FACT: Lupus is very difficult to diagnose because there is no single lab test that can confirm a lupus diagnosis. Lupus often imitates several other diseases like RA, chronic fatigue syndrome, or fibromyalgia. How long did it take you, or someone you know, to get diagnosed? www.MollysFund.org
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QUESTIONS of the WEEK: Aly asks, "Does anyone have autoimmune hepatitis with their SLE? Or any liver complications? What tests did your doctor use to diagnose and what were your symptoms?" And Tabitha asks, "Has anyone with lupus had their head itch like crazy and loose hair?" Please help Aly and Tabitha with your suggestions and comments! www.MollysFund.org
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Meet Ana, who shared her inspiring Story of Hope with us at Molly's Fund Fighting Lupus. Please like and comment to show Ana your support and let her know that she is not alone! To read more stories or to share yours, go to http://www.mollysfund.org/learn-about-lupus/stories-of-hope/
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FACT: Sometimes the side effects of medications used to treat lupus are worse than the symptoms of lupus itself. Side effects of lupus medications may include: nausea, hair loss, anemia, infection, high blood pressure, organ damage, infertility, and increased risk of cancer. What are some of your favorite ways to lessen side effects of your meds? www.MollysFund.org
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QUESTIONS of the WEEK: Corina asks, "I was diagnosed with lupus and hemolytic anemia last April. I have had 2 blood transfusions and 2 rounds of chemotherapy; my doctor says the next step is a splenectomy due to not being able to produce enough blood cells. Has anyone had a splenectomy, and if so did it or did it not help you!?" And Karen asks, "I had the worst experience I've ever had with brain fog. I couldn't remember my address or what year it was. I couldn't even remember the word "lupus," and panicked. After I calmed down, like 45 mins later, everything came back. Has anyone else had this happen??" Please help Corina and Karen with your suggestions and comments! www.MollysFund.org
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Meet JaVonna, who shared her inspiring Story of Hope with us at Molly's Fund Fighting Lupus. Please like and comment to show JaVonna your support and let her know that she is not alone! To read more stories or to share yours, go to http://www.mollysfund.org/learn-about-lupus/stories-of-hope/
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