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Ellen Schnakenberg
279 followers -
Professional Patient Educator/Advocate, Writter, Blogger. Chronically happy community volunteer :)
Professional Patient Educator/Advocate, Writter, Blogger. Chronically happy community volunteer :)

279 followers
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Here is the complete study mentioned by American Academy of Pain Management in the post previous to this.

http://online.liebertpub.com/doi/pdfplus/10.1089/acu.2016.1183

Reminder: This is a place for patients and those who love them, to seek and share information and support. This is NOT a place for self-promotion. While we are very proud of our members and what they are doing to help other patients, simply placing a link to a personal blog, activity, etc is self promotion removes the safe haven aspect of this space, and can lead to removal from the group. This is a group of amazing people, and they are reading what is written here, and it makes a difference for them. YOU can make a difference for them. Please, let's generate some helpful conversation along with helpful links. It's about others, not just the writer. If you want to place links, ask questions. Give personal experience. Make someone feel that they are special, and not alone or being used for their illness.  <3

Doctor-friend's grandson - aged 12 - diagnosed with chronic cluster headaches. The diagnosis is unclear though, so they are trying every treatment they can. I remember my son's severe Migraines turning chronic at age 4 and it all comes rushing back. So difficult to hear this... 

One of THE most helpful things a Migraine patient can do is find a Migraine and headache specialist. A neurologist can be a specialist, but so can other doctors. A specialist not need be a neurologist, and indeed some of the best are not neuros. These wonderful doctors have had additional specialized training and loads of experience with patients like us who tend to need out-of-the-box treatments and care. Many have Migraine themselves. Those that don't have dedicated their lives to helping us anyway. Check to be sure the doctor you're considering isn't just saying they're a sub-specialist in Migraine and headaches. A couple hours learning where to inject Botox does not a specialist make!

 
Lots of new members - Yeah! Thank you for joining us. Please remember: this is a spam free zone and a safe haven for patients and those who love them. Please share your experiences, knowledge, and places you like to visit online, but keep business ventures and self promotion away from this space. Those violating these rules will immediately be removed. Thank you so much for respecting the others here :)

Lots of new members - Yeah! Thank you for joining us. Please remember: this is a spam free zone and a safe haven for patients and those who love them. Please share your experiences and knowledge, but keep business ventures away from this space. Those violating these rules will immediately be removed. Thank you so much for respecting the others here :)

Is there anyone here with hemicrania continua or other trigeminal autonomic cephalgia, in addition to chronic Migraine? Am desperately needing to find someone quickly for support and advice...

Welcome to new members! Please remember, no spamming will be tolerated. This is a safe haven for patients and those who care about them. Please introduce yourself and help us get to know you!

Welcome to new members. I hope you'll join in the conversation. Share your story and help someone else. No spamming allowed, so this is a safe space.

Sending you all warm ((Hugs)) and hoping today was good for you and your families. Hang in there. 
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