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CP Fam
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Providing medical and legal resources for families and their children with cerebral palsy.
Providing medical and legal resources for families and their children with cerebral palsy.

149 followers
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Finding your own "Mary Poppins" might be easier than you think... http://cpfn.us/p47a6 #caregiversupport   #caregivertips   

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Live your truth! Inspire others!
Inspiration

"Inspire Your Peers"


Have a great day !! 

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Sheena shared this photo of her son Jaiden. "He is 3 1/2 years old and was diagnosed with spastic quadriplegic cerebral palsy. At birth he suffered a lack of oxygen (hypoxic ischemic encephalopathy). He was never supposed to make it home from the NICU. Everyday we have with our son is a miracle in its self."
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One special weekend every year, the small Illinois town of Kewanee (population 12,916) turns into a place of celebration and delight, as the annual Miss You Can Do It pageant spotlights young girls with disabilities from around the country. Abbey Curran, Miss Iowa 2008, started the pageant in 2004 to offer these girls, who like herself have special needs, the opportunity to be celebrated for their inner beauty and spirit.

http://cpfamilynetwork.org/in-the-news/hbo-to-premiere-miss-you-can-do-it-pageant-doc-on-624

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Just had to share this picture of my son, Ondrej, in his ballet outfit. They are performing Let's Go Fly a Kite from Mary Poppins. Ondrej has hypotonic cerebral palsy.
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Hello everyone. I would like you to meet my daughter Taylor Marie Picou. 18 years ago God gave her to my family and I weighing in @ 1lb12.2oz. This is her at her high school graduation. We were told at the age of 9mons that she had CP. We are all very scared not knowing anything about CP. But as the old saying goes God never gives us more than we can handle. Taylor is a blessing to our family and it is truly a honor to be blessed with such a wonderful daughter. CP doesn't stop her. She is getting ready to start college in August. Oh and did I mention she was voted by her peers to be Prom Queen!! Keep up the great job Taylor. We all love you to the moon and back!!! Love mom.
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My son was born in 2006 and is now 7 he was born at 26 gestation and weighed 740g (1lb 10oz). He was diagnosed with chronic lung disease and a hole in the bladder when in hospital, we spent 12 weeks in ICU with him. He weighed 5lb 14oz when he was able to come home we have had numerous problems with speech and eating problems so 2009 he was diagnosed with autism and last month they finally diagnosed him with cerebral palsy. It's a long road and days are very hard but he's very luckily to be here.
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This is my beautiful daughter Riley. She has been diagnosed with cerebral palsy. When I delivered her she was 41 weeks and I had a perfectly healthy pregnancy with no complications. I had only met the doctor that delivered her one time. When she came in to start the induction process she was incredibly rude and didn't even say good morning or talk to us on what to expect. About 5 hours in the pitocin was started. Riley's heart rate started dropping low and the nurses seemed very concerned. One nurse said she had never seen a babies heart rate drop that low for that long in her 30 years experience as a nurse. When we questioned the doctor on what is going on she said she will be monitoring from another room. I eventually asked for an epidural. About 20 min after the epidural I felt the worst pain. The doctor came in and checked my dilation and said I wasn't even close and walked out of the room.. She waited and had me and Riley suffer 4 more hours and eventually came in and said "we have an unhappy baby in there".. I got a c section. They took her away right away and said she had meconium in her lungs and she was fine. I was not allowed to see her for 10 hours. Nobody would tell us what was going on just she needed rest. Then a nurse comes in saying something was found on Riley's brain so she was rushed to Musc children's hospital. She had seizures for the first few days but recovered quickly and was home 7 days later. The doctor who delivered her called me 5 days after her birth and asked what the other doctors think caused this injury and asked if my daughter has a blood clot problem. I was outraged that she did not care about my baby at all. Then I find out this same doctor was severed a law suit just weeks before my daughter was born for the exact same thing. Riley is now almost two. She still is not walking or talking but overall is just an amazing little girl! She is catching on quickly and is in therapy 4 times a week. Please keep her in your prayers :)
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