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Dawn Manogue
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April 2016
A long overdue update! Overall, John is doing very well. Many people with kidney failure develop issues with the parathyroid gland .The main purpose of the hormone produced by this gland is to keep phosphorous and calcium levels consistent in the blood. Amo...
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July 2015: A Year In Review
John has been on dialysis for one year this week. Wow, what a year. In February 2014, we learned that John's transplanted kidney was beginning to fail after 22 years. It is possible to live quite well with minimal kidney function, so we had the idea that Jo...
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March Update
John is finishing his Harvoni treatment for Hepatitis C, he has just over a week left. The doctors will check his blood for the viral load over the next few months to see if there is a recurrence.  This happens, and a second round of Harvoni has a 100% cure...
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Harvoni / Hepatitis C
John has been taking the new Hepatitis C treatment, Harvoni , for one month.  The only side effect he has experienced is an occasional mild headache.  Managing this drug while on dialysis has been a bit confusing, as it is new territory for all involved--bo...
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GROUPLOVE
You know how when you listen to Grouplove you get the idea that the fantastic energy you feel comes not only from the notes being played but also the people playing it?  That somehow the sincerity, playfulness and intensity translates--even into the recorde...
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Many appointments
Dialysis has been fine.  We blew an electrical fuse one day last week and had to learn how to do an 'emergency manual rinseback' with the machine off.  It was fairly dramatic. We also did bloodwork and sent that out to check levels that can vary due to the ...
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Fantastic New Year Update
On December 31, 2014 at 4:30pm, we got word that John was APPROVED for the HVC medication by our medical insurance company.  The approval covers Harvoni, the newly approved combo pill used to treat hep C.  This will be 12 weeks of treatment, which will pote...
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'Tis the Season!
There has been an incredible outpouring of support for our family in the past few weeks. The financial help is wonderful, but the support involves much more than just money. We appreciate each and every gesture:  thoughts, prayers, cards, phone calls, visit...
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December update
Still no update on the Hepatitis C treatment, we are appealing to the insurance company currently and hope to find out in the next week or so.  We will find treatment somehow--it is urgent that we clear this virus soon before more damage occurs to the liver...
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Save the date! December 14 Fundraiser
For Immediate Release For more information: Amy LaBossiere , (860) 543-3244 amy@stillwaterspond.com Artist Friends Create Fundraiser to Help West Hartford Family Who Needs Kidney Hartford, CT — [November 23, 2014] — John Toomey needs a kidney, and their art...
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