Profile

Cover photo
Aaron Edrington
4 followers|136,744 views
AboutPostsPhotosVideos

Stream

Aaron Edrington

Shared publicly  - 
 
Finding Joy…in Matilda (the pet whale)
This rambling of thoughts is less about Meara specifically and more about my frustration with living amongst the world that she is growing up in.  Though it's not about my reality…more about the reality that surrounds me.  Does that make sense?  Yeah, doesn...
This rambling of thoughts is less about Meara specifically and more about my frustration with living amongst the world that she is growing up in. Though it's not about my reality…more about the reality that surrounds me. Do...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
A Pilgrimage
Megan shared a blog post with me from Thanksgiving 2013.  It was frightening.  An opening that felt incredibly intense.  A sense of fracture and imagery that just pierced the already fragile day to day existence that I've come to inhabit lately.  Meara is d...
Megan shared a blog post with me from Thanksgiving 2013. It was frightening. An opening that felt incredibly intense. A sense of fracture and imagery that just pierced the already fragile day to day existence that I've com...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Shunt Revision Surgery
This week the CSF built up in Meara's head and wasn't draining like it should.  Finally, after she threw up Thursday we called Childrens and took her in on Friday for a MRI and consult.  The MRI showed that her ventricle was enlarged, meaning that the shunt...
This week the CSF built up in Meara's head and wasn't draining like it should.  Finally, after she threw up Thursday we called Childrens and took her in on Friday for a MRI and consult.  The MRI showed that her ventricle was ...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Next Steps
I've had a good amount of friends ask what our next steps are with Meara's treatment. We've signed Meara up for Realm of Caring in Colorado Springs which is the non-profit that grows and dispenses the Charlotte's Web strain of CBD. It's actually classified ...
I've had a good amount of friends ask what our next steps are with Meara's treatment. We've signed Meara up for Realm of Caring in Colorado Springs which is the non-profit that grows and dispenses the Charlotte's Web strain o...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Update on Meara...
Meara's shunt is working. Most of the time there is no fluid in her scalp. She is having seizures at night. When we had the EEG at the hospital she went the entire night without any but we've seen them at home. It's undeniable. We haven't decided any next s...
Meara's shunt is working. Most of the time there is no fluid in her scalp. She is having seizures at night. When we had the EEG at the hospital she went the entire night without any but we've seen them at home. It's undeni...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Despite it all...it's alright.
Since Meara's shunt revision the fluid did not go away, meaning the valve wasn't working.  In fact, the fluid built up significantly.  A week and a half ago, they did an x-ray and determined that there was air in the valve.  The surgeon manipulated the valv...
Since Meara's shunt revision the fluid did not go away, meaning the valve wasn't working.  In fact, the fluid built up significantly.  A week and a half ago, they did an x-ray and determined that there was air in the valve.  ...
1
Add a comment...
In his circles
2 people
Have him in circles
4 people
Jim Arnow's profile photo
Patricia Bissell's profile photo
Patti Arnow's profile photo

Aaron Edrington

Shared publicly  - 
 
Light...
Everything that broke my heart has made me rethink why and how I should spend my time living.  Everyone has their share of hurt and everyone has moments when they lose their mind. Then, light.  And imperfection. And joy, and love.  And laughter. Every day i...
Everything that broke my heart has made me rethink why and how I should spend my time living. Everyone has their share of hurt and everyone has moments when they lose their mind. Then, light. And imperfection. And joy, a...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Grace
Ask Megan.  It's been quite some time since I've written.  Part of it is that I need solitude.  I need to pursue the truth that there is something bigger than me.  This journey, this space, whatever it is that you want to call it, this place that I inhabit…...
Ask Megan.  It's been quite some time since I've written.  Part of it is that I need solitude.  I need to pursue the truth that there is something bigger than me.  This journey, this space, whatever it is that you want to cal...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Update following EEG and Neurology Visit
Meara had a EEG stay at the end of June.  Were were there for three days and during the stay she had one seizure.  The rest of the movement in her sleep they identified as arousals.  So, that is good news.  She might not be having as many as we think based ...
Meara had a EEG stay at the end of June.  Were were there for three days and during the stay she had one seizure.  The rest of the movement in her sleep they identified as arousals.  So, that is good news.  She might not be h...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Fast MRI
Megan took Meara (along with the girls) down to Children's today for a fast MRI so neurosurgery could get a new baseline post-surgery.  Everything is looking good.  The neurosurgeon said after reviewing the images that her ventricle is small meaning that it...
Megan took Meara (along with the girls) down to Children's today for a fast MRI so neurosurgery could get a new baseline post-surgery.  Everything is looking good.  The neurosurgeon said after reviewing the images that her ve...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Neurosurgery Visit and Update...
Megan took Meara for a checkup today with neurosurgery.  Things are looking on the up.  We've been wrapping her head with the ace bandage but less each day.  Now we are only going to keep it wrapped at night and let her be free of it during the day.  The fl...
Megan took Meara for a checkup today with neurosurgery.  Things are looking on the up.  We've been wrapping her head with the ace bandage but less each day.  Now we are only going to keep it wrapped at night and let her be fr...
1
Add a comment...

Aaron Edrington

Shared publicly  - 
 
Another Shunt Surgery
Last Thursday afternoon (Feb. 20) the valve of Meara's shunt slid to the front of her forehead.  It's not supposed to do that.  The following day Megan took her to Children's for a scheduled wound check and they performed an x-ray.  It confirmed that the ca...
Last Thursday afternoon (Feb. 20) the valve of Meara's shunt slid to the front of her forehead.  It's not supposed to do that.  The following day Megan took her to Children's for a scheduled wound check and they performed an ...
1
Add a comment...
People
In his circles
2 people
Have him in circles
4 people
Jim Arnow's profile photo
Patricia Bissell's profile photo
Patti Arnow's profile photo
Basic Information
Gender
Male