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Aaron Edrington
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Next Steps
I've had a good amount of friends ask what our next steps are with Meara's treatment. We've signed Meara up for Realm of Caring in Colorado Springs which is the non-profit that grows and dispenses the Charlotte's Web strain of CBD. It's actually classified ...
I've had a good amount of friends ask what our next steps are with Meara's treatment. We've signed Meara up for Realm of Caring in Colorado Springs which is the non-profit that grows and dispenses the Charlotte's Web strain o...
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Aaron Edrington

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Update on Meara...
Meara's shunt is working. Most of the time there is no fluid in her scalp. She is having seizures at night. When we had the EEG at the hospital she went the entire night without any but we've seen them at home. It's undeniable. We haven't decided any next s...
Meara's shunt is working. Most of the time there is no fluid in her scalp. She is having seizures at night. When we had the EEG at the hospital she went the entire night without any but we've seen them at home. It's undeni...
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Despite it all...it's alright.
Since Meara's shunt revision the fluid did not go away, meaning the valve wasn't working.  In fact, the fluid built up significantly.  A week and a half ago, they did an x-ray and determined that there was air in the valve.  The surgeon manipulated the valv...
Since Meara's shunt revision the fluid did not go away, meaning the valve wasn't working.  In fact, the fluid built up significantly.  A week and a half ago, they did an x-ray and determined that there was air in the valve.  ...
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Aaron Edrington

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Staying another night, fluid building back up...
Staying another night.  From a neurological standpoint Meara is cleared.  Everything looks good except the fluid has built back up and they just want to make sure it doesn't get any bigger or that it doesn't spring a leak.  In some cases it could take time ...
Staying another night.  From a neurological standpoint Meara is cleared.  Everything looks good except the fluid has built back up and they just want to make sure it doesn't get any bigger or that it doesn't spring a leak.  I...
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Shunt Surgery and Recovery
Meara's surgery went okay. The surgeon said the shunt was a little fussy, just because of the space, scar tissue, fluid area etc, so it took a little longer than they had planned but they got it in. Meara woke up in a lot of pain in the recovery room. She's...
Meara's surgery went okay. The surgeon said the shunt was a little fussy, just because of the space, scar tissue, fluid area etc, so it took a little longer than they had planned but they got it in. Meara woke up in a lot of ...
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Admitted to Hospital
Meara was admitted to children's hospital this afternoon. She might have had some leakage from her head and so they wanted to put in a subdural drain (this will be her third one) to drain the CSF and collect it for a culture. If by Thursday there is no evid...
Meara was admitted to children's hospital this afternoon. She might have had some leakage from her head and so they wanted to put in a subdural drain (this will be her third one) to drain the CSF and collect it for a culture...
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Fast MRI
Megan took Meara (along with the girls) down to Children's today for a fast MRI so neurosurgery could get a new baseline post-surgery.  Everything is looking good.  The neurosurgeon said after reviewing the images that her ventricle is small meaning that it...
Megan took Meara (along with the girls) down to Children's today for a fast MRI so neurosurgery could get a new baseline post-surgery.  Everything is looking good.  The neurosurgeon said after reviewing the images that her ve...
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Neurosurgery Visit and Update...
Megan took Meara for a checkup today with neurosurgery.  Things are looking on the up.  We've been wrapping her head with the ace bandage but less each day.  Now we are only going to keep it wrapped at night and let her be free of it during the day.  The fl...
Megan took Meara for a checkup today with neurosurgery.  Things are looking on the up.  We've been wrapping her head with the ace bandage but less each day.  Now we are only going to keep it wrapped at night and let her be fr...
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Aaron Edrington

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Another Shunt Surgery
Last Thursday afternoon (Feb. 20) the valve of Meara's shunt slid to the front of her forehead.  It's not supposed to do that.  The following day Megan took her to Children's for a scheduled wound check and they performed an x-ray.  It confirmed that the ca...
Last Thursday afternoon (Feb. 20) the valve of Meara's shunt slid to the front of her forehead.  It's not supposed to do that.  The following day Megan took her to Children's for a scheduled wound check and they performed an ...
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Aaron Edrington

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Staying another night, fluid building back up...
Staying another night.  From a neurological standpoint Meara is cleared.  Everything looks good except the fluid has built back up and they just want to make sure it doesn't get any bigger or that it doesn't spring a leak.  In some cases it could take time ...
Staying another night.  From a neurological standpoint Meara is cleared.  Everything looks good except the fluid has built back up and they just want to make sure it doesn't get any bigger or that it doesn't spring a leak.  I...
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Aaron Edrington

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Shunt Surgery Friday Morning
Meara's been on the subdural drain since Monday evening.  She had to have a IV put in Tuesday evening to put her on saline drip because she wasn't peeing enough and hadn't eaten much either.  They just wanted to make sure that her sodium levels didn't drop ...
Meara's been on the subdural drain since Monday evening.  She had to have a IV put in Tuesday evening to put her on saline drip because she wasn't peeing enough and hadn't eaten much either.  They just wanted to make sure tha...
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Change of Plans
Meara started developing symptoms of a cold yesterday afternoon and when she woke up this morning the symptoms were worse.  As a result the surgery has been postponed until she is free of the cold.   The pressure in her head is intense at the moment and she...
Meara started developing symptoms of a cold yesterday afternoon and when she woke up this morning the symptoms were worse.  As a result the surgery has been postponed until she is free of the cold.   The pressure in her he...
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