Profile cover photo
Profile photo
Tris Ann Gaydos
9 followers
9 followers
About
Tris Ann's posts

Post has attachment
Main muscles involved in Cervical Dystonia.
I have been trying to educate myself on the dosing and muscles that are injected for my dystonia. It is hard to explain to the doctor where something hurts and then realize that where it hurts may be caused by a different muscle contracting. It is very comp...

Post has attachment
Botox update: Week 4
I wanted to give you an update on my Botox injections and how I have been feeling.  The first few weeks I was nervous. I felt like my neck muscles were getting so weak that they could not support the weight of my head. I felt weak and like I had the flu for...

Post has attachment
Video of my 2nd round of Botox Injections
The injection process Botulinum toxin injections are administered by trained medical professionals (usually a doctor, physiotherapist or dystonia nurse) and most commonly delivered at a local hospital. Some people find the injection hurts a little but other...

Post has attachment
Dystonia and Genetics
I have been very concerned about the possibility of my dystonia being inherited. I am estranged from my mother and I have no way of know if anyone on her side of the family had any form of dystonia. Here is a copy of the Dystonia and Genetics pamphlet from ...

Post has attachment
BOTOX Update
I am into my 10th week of my first round of BOTOX injections since March of 2014. I was afraid to try BOTOX again because the injections in 2014 made me feel worse. The doctor used a higher dose that caused me to lose feeling in my left leg and arm and the ...

Post has attachment
Finding a sense of purpose when nothing makes sense.
I had therapy today and discussed my inability to accept that I have put my life on hold waiting to feel better. I need to find a way to get out more often but some days the pain is too overwhelming and holds me back. I refuse to accept that this is how my ...

Post has attachment
New video update of my progress.
Six months after starting treatment with Dr. George Kukurin... I am so grateful to have these videos sent to me by Dr. K to continually see my progress. It is difficult as well because it may look like I'm doing great, but there is a lot of pain and hard wo...

Post has attachment
Active Research Studies at UCSF for Movement Disorders
Active Research Studies at UCSF for Movement Disorders Chronic Effects of Deep Brain Stimulation on Cortical Local Field Potentials in Parkinson’s disease and Dystonia (Activa PC+S /Brain Radio) Principal Investigator: Philip Starr, M.D., Ph.D. Contact: Sar...

Post has attachment
Hope Restored Functional Neurology Serves Humanity


Post has attachment
Dr. Antonucci explains the MARC chair and how it works for my dystonia and other disorders.
How does the Multi-Axis Rotational Chair ( MARC) help my Dystonia?
Wait while more posts are being loaded