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Mandy Morbid
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Mandy Morbid

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So this is gonna happen. TPN (total parenteral nutrition, parenteral means intravenously) --I'll be fed into my heart bypassing my severely dysfunctional GI system completely. This should greatly improve my quality of life however the risks are significant, and more so for me because of the immunological aspects of my Ehlers Danlos Syndrome. The main risks are infections of the catheter leading to death by septic shock, blood clots which can move into the lungs = more death, liver and metabolic complications. There's a bunch of other stuff too. But if I'm
careful and watchful and if I'm closely monitored we'll hopefully avoid any serious trouble. They are saying once the TPN is set up and they make sure I'm safe and nothing's off balance I should be able to go home very soon. 
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Luck!
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Mandy Morbid

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Back in the hospital. Missing Twiggy's birthday party. Not impressed body. 
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Hopefully they help you feel better soon
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On the roof in the sunshine with my girl and (for awhile anyway) a puppy). Maybe everything will be okay. 
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Love the ink, love the tats, love the dog, and hoping your day was fabulous Mandy. All my best and with the most positive energies your way.
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Home from the hospital now.
Spent a bit of time on our roof in the LA sunshine with +Michelle Tegel/Connie/Jinx after being in that hospital room for a solid week.
All set up with my PICC line here now for fluid administration at home. Twice a day for two to four hours I'll be hooked up to glorious fluids. Still in too much pain today to run my feeding tube but that should go away the less dehydrated I become. Nurse assures me that I cannot "live on fluids alone". (She thinks I need TPN.)
Seeing my motility specialist on Monday to make sure all this is working the way it should--or at least discuss how little calories/nutrition I'm getting still.

Steps in the right direction I suppose.

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Best wishes to you Mandy and you have such an amazing group of people with you. They are priceless.
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“One thing you can't hide - is when you're crippled inside.” ― John Lennon
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Mandy Morbid

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<3
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Super sweet. 
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Get better!
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<3 
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+Mandy Morbid You're a brave woman, Ms. Morbid. :)
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Mandy Morbid

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snort
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In other news, "Pigs can now fly".  Horray!
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Earlier this evening I was posing for topless polaroids for a friend who's a professional photographer wearing no makeup hooked up to my PICC line getting fluids, now I've just injected a couple syringes full of stuff directly into a line running to my heart.

(When my fluid bolus is finished I have to flush the line with sodium to clear it, then I have to give myself heparin, a blood thinner to prevent clots. All while making sure I maintain absolute sterility. I use the same tube twice so the red caps in the photo keep my tube clean & safe while not in use. The green caps screw onto the bit of the PICC line that runs into me. They are filled with alcohol and help keep me safe while the PICC isn't in use. In between every step I have to rub down the open end of the line with alcohol swabs between flushes, or connecting to boluses or whatever. I use hand sanitizer and wear gloves, and I wipe down the surface my wrapped materials lay on with disinfectant wipes first. Nothing gets unwrapped until I need it and have gloves on. I am not going to let an infection get to my heart.)


Oh my life is getting weirder. 
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Brave woman....
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My beautiful new PICC line! This is key to my getting some quality of life back. A nurse will have to visit once a week and I will have to be extraordinarily careful about infections and it getting tugged on but it's worth it.
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I had a PICC for a year in 2009 (technically 2 for 6 months each) during chemotherapy, and again for a few months last year. They seem so alien at first and then it really does just start to feel like part of your arm. I even pulled it a bit loose getting out of a car once and getting it adjusted wasn't bad at all. Personally I never had any problems with kinks or infections, and I went about my life as normally as was possible at the time. Be aware of it and take all the precautions, but in my experience it was okay and really raised my quality of life. Hope it does the same for you. Stay strong!
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Story
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Yes they're real.
Introduction
I'm Mandy, I'm a nude model based in LA. I am 29 years old and I have Hypermobility Type Ehlers Danlos Syndrome but with lots of overlap with other types and when not modeling and not playing games at home I am covered in braces and use a wheelchair. 

I like science fiction, art, comic books, books in general but especially Zak Smith, Martin Amis, M.John Harrison, Jack Vance and Jean Paul Sartre, videogames, Doom Metal, neuroscience, traveling, tabletop RPGs and you may know me as Adria on SuicideGirls, you can also find me as Mandy Morbid on Crazybabe.com and Stagg Street.com. 

My tumblr is Not Safe For Work: www.mandymorbid.tumblr.com

 Oh and I have a blog I've been neglecting lately but I'll get back to that eventually; www.mandymorbid.com

I played the cleric Tizane on our D&D show I Hit It With My Axe. Yes my boobs really are natural.

I've been dating the artist, author and adult performer Zak Smith/Sabbath for the past 7 years. I did a handful of adult movies myself back when I was healthy--Mandy Candy directed by Kimberly Kane is my favorite.

I have a Twitter and Facebook but I am too lazy to provide all the links right now. I am NOT on Deviant Art or any other site not mentioned here.
Bragging rights
Grew up a sick kid in the hospital all the time and am a stronger and more self aware person because of it/am an autodidact/proud girl gamer and love any chance to twist and writhe naked for someone's camera/used to care for severely medically fragile and special needs kids in fosterhomes/know and sing along to Mordin's version of "Modern Major General" when I play ME2/Own every episode of every season of every Star Trek series excpet for the awful "Enterprise"/Met Leonard Nimoy on my 23rd birthday/Have Tie Fighters tattooed on my hip/Have a pink Tie-Fighter and a pink bedazzled Klingon Bird of Prey and Millenium Falcon hanging from my living room celing.
Basic Information
Gender
Female
Relationship
In a relationship
Other names
Adria on SuicideGirls.com
Links
Work
Occupation
model and waif
Contact Information
Home
Phone
email me. my name plus gmail dot com
Work
Phone
email me, my name plus at gmail dot com