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Patient Empowerment Network
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Empowering patients worldwide through knowledge and support.
Empowering patients worldwide through knowledge and support.

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Are we ready for mobile health? Read as Marie Ennis-O'Conner explores this. #mHealth #MobileHealth http://ow.ly/WBikO  

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On Saturday, March 7th in Tampa, Florida, Patient Power and LUNGevity will hold a free in-person forum at Moffitt Cancer Center—a large NCI-designated comprehensive cancer center transforming cancer care— where you and your loved one can hear the latest in treatment and research from leading lung cancer experts. Hear about emerging therapies, understand current treatment options and learn about support resources.

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Stress affects all of us in one way or another. By definition, stress is a state of mental or emotional strain or tension resulting from adverse or very demanding circumstances.

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Like any cancer survivor, I worry about what’s next. Am I bruising too much? Is this little “twinge” something serious? Is this just a cold, or could it be pneumonia? My wife thinks I am a hypochondriac, but she acknowledges that it can be understandable. After all, I was first diagnosed 18 years ago. I stuff the fears down, but they are there. And that’s why there’s a trend on Facebook that scares me: patients who are not doing well post some of the most gruesome photos. Do we really need to see?

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This is my 9th year attending ASH (American Society of Hematology), where over 26,000 attendees (most ever) from all over the world (hematologists/oncologists, lab researchers, oncology nurses, scientists & 300 pharma companies) presented latest research results via both oral presentations (1000) as well as posters (3000) on all blood cancers. This year there were 855 abstracts (>100 clinical) on Myeloma alone, many of which were selected for oral presentation.

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Success means so much – its definition is reflective of the heart & soul of the perceived successor. To me – Success is not just about chasing a dream and securing it – true success is a lot deeper than pushing through a physical barrier to win the prize on the other side.

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I’ve just returned from MD Anderson in Houston where I facilitated a Multiple Myeloma (MM) forum put on by the Patient Empowerment Network (PEN). The program was titled “2014: Accelerating Progress in Myeloma and What it Means for You” and attended by 225 MM patients and caregivers plus another 40 folks watching live on-line.

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The Patient Power patient live forum on multiple myeloma took place in Barcelona on October 11th. The meeting was for Spanish-speaking patients and their families and caregivers. Patients enjoyed the event, learned a lot and are enthusiastic about more patient forums to come.

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In the last 10 years, PAN has provided a financial safety net for 300-thousand patients grappling with life-threatening or chronic diseases. PAN has paid out nearly three-quarters of a billion dollars to help those patients pay medical bills. And while it will continue that part of the mission, it recognizes that the medical landscape is changing. 
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