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+33 1 56 53 52 10, eurordis@eurordis.org
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Rare Diseases Europe - The Voice of European Patients
Introduction

The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.

EURORDIS' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.

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EURORDIS

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The official 2015 +Rare Disease Day   video is out now! Bring people living with a rare disease out of the shadows and into the spotlight! Watch and share the video with your friends, families and colleagues. http://www.rarediseaseday.org/article/watch-and-share-the-official-rare-disease-day-2015-video
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Tania Tirraoro's profile photoLorena Ariza's profile photo
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EURORDIS

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Live! https://www.facebook.com/eurordis/app_147928242041126 Follow the twitter feed of the European Conference on Rare Diseases & Orphan Products and join the discussion with #ECRDBerlin
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Do you have any questions you would like to ask about RareConnect?  If so please click 'Yes' below to join this Hangout and we'll be happy to answer your questions face to face via a video call.
Weekly RareConnect Hangout
Wed, December 11, 2013, 9:30 AM EST
Hangouts

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Have them in circles
74 people
Siren Interactive's profile photo
marianne vennitti's profile photo
Timo Söderlund's profile photo
Jerry Williams (Myositis Support)'s profile photo
Annie-Danielle Grenier's profile photo
I Have IIH Foundation's profile photo
Bradley Johnson's profile photo
Fmdt Sosglobi's profile photo
PIP-UK Charity's profile photo

EURORDIS

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Live: Participants raising hands at #ECRDBerlin. You too, raise and join your hands for rare diseases! http://www.rarediseaseday.org/join-your-hands/
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+EURORDIS TV video of the week:  A Father's Words.

A poignant reflection on the trials and joys of Rett Syndrome from the perspective of fathers. Created by Jason Rothschild, father to Zoe.

Video debuted at +reverserett 
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EURORDIS's profile photoRareConnect's profile photo
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Visit the +RareConnect #Rett Syndrome community to meet with others from around the world: https://www.rareconnect.org/en/community/rett-syndrome
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Watch curated videos on various topics surrounding rare diseases on our TV channel. Suggest your video to be added by writing eurordistv@eurordis.org
About EURORDIS · Who we are · What we do · Membership · Library · Our funding · Donate · Contact us · Job openings · About Rare Diseases · What is a rare disease? Find information or help · A public health priority · Rare Disease Policy · EU Rare Disease Policy · National Rare Disease Policy ...
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