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The European Organisation for Rare Diseases, EURORDIS, is a patient-driven alliance of patient organisations and individuals active in the field of rare diseases.
EURORDIS' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and - directly or indirectly - to fight against the impact of rare diseases on their lives.
A poignant reflection on the trials and joys of Rett Syndrome from the perspective of fathers. Created by Jason Rothschild, father to Zoe.
Video debuted at