Profile

Cover photo
Cystic Fibrosis Foundation
1,308 followers|1,092,213 views
AboutPostsPhotos

Stream

 
Today we’re thrilled to announce the recipients of our first annual Impact Grants, a program that provides up to $10,000 per year to individuals or organizations that benefit the cystic fibrosis community. Seven exceptional applicants have received grants to realize their goals. Head over to the CF Community Blog to learn more about the recipients!
The Cystic Fibrosis Foundation has awarded the 2016 Impact Grants to individuals or organizations making a positive impact on the cystic fibrosis community.
1
Add a comment...
 
If you have cystic fibrosis, or are a caregiver to someone living with CF, we want to hear from you! Help us shape future plans, priorities, programs and services at the Foundation by taking our Mind of the Community survey today.
0%. You can take this survey in English or Spanish. Which would you prefer? Ud. puede completar este encuesta en Ingles o en Español, cual prefiere usar? English/Ingles. Español/Spanish. © 2016 Edge Research, Inc.
1
Add a comment...
 
Have you ever wondered how your mental health affects your physical health when you have cystic fibrosis? Now's your chance to submit your questions to Insight CF, a project where we gather your questions and will select some of those questions for further research. Submit your questions now, the last day to submit is Tuesday, January 31!
Are you sure you want to leave this form and resume later? If so, please enter a password below to securely save your form. Save and Resume Later. Save and get link. You must upload one of the following file types for the selected field: There was an error displaying the form. Please copy and paste the ...
2
Add a comment...
 
"It feels righteous, almost macho, to hold myself to a standard of excellence -- to try to move mountains for my wife. There’s something fulfilling about striving to do the best, the impossible, for our loved ones, but caregiving is often a marathon and not a sprint."

Today on the CF Community Blog, Ray Poole opens up about the guilt he felt spending the last year in the hospital caring for his wife, who is living with cystic fibrosis.

How much are you willing to do for a loved one? The answer is simple: anything and everything, right? We advocate for them, make sacrifices to be with them and worry about them constantly. Last year I did all of this, but -- somehow -- still felt pangs of guilt.
1
Joshua Dufresne's profile photo
Add a comment...
 
When it's cold outside, it can be tough to stay motivated to keep up with your regular fitness plan. Let us know in the comments: How do you incorporate physical fitness into your routine in the winter?
1
Add a comment...
 
Today's the last day to make a tax-deductible donation to the Cystic Fibrosis Foundation for 2016. Don't wait -- donate now and help add tomorrows for people living with cystic fibrosis like Kiran. 
1
Add a comment...
 
If you're a parent, you know that preparing to take a vacation without your child can be time consuming. And if your child has cystic fibrosis, you may know that preparing to travel involves even more prep work and organization.

Today on the CF Community Blog, check out our newest post by Jaclyn Strube, a mom to a toddler living with CF, for seven tips for taking a vacation without your child with CF.
Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
2
Add a comment...
 
Did you resolve to give back to your local community in 2017? Every year, more than 125,000 people walk with us at Great Strides events across the country – and you can too! Register today to help add tomorrows for people living with cystic fibrosis.
Great Strides: Why We Stride Contact Us Resources FAQs Find a Walker/Team National Teams. Cystic Fibrosis Foundation: About The Foundation About Cystic Fibrosis. Follow Us: Facebook Twitter instagram Google + YouTube. © 2017 Cystic Fibrosis Foundation. "Great Strides," "65 Roses" and ...
1
Add a comment...
 
When it comes to your cystic fibrosis care, do you feel comfortable asking questions of your care team at the hospital or during clinic visits? Today on the CF Community Blog, Cheriz Kunkel, an adult living with CF, shares her tips for how you can advocate for yourself in and out of the hospital.
I’ve learned over the years to speak up and ask questions when it comes to my cystic fibrosis care.
1
2
Add a comment...
 
Last month, we used social media to ask what your resolutions were for 2017. In our first post to the CF Community Blog this year, check out some of the responses we received from you.
2017 may be a new year, but are the resolutions we make ever really “new”?
2
Add a comment...
 
People with cystic fibrosis are living longer than ever. And as people age, people are at risk for two common bone diseases: osteoporosis and osteopenia. Learn what you can do in 2017 to improve your bone health for the future. 
A high-calorie, nutrient-dense diet and exercise leads to healthy, strong bones for people with cystic fibrosis. Good nutrition also means taking vitamin and mineral supplements and sometimes medication.
1
Add a comment...
 
Wishing all of you a happy, healthy and safe New Year! What are your resolutions for 2017?
1
Add a comment...
Story
Introduction
The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for cystic fibrosis.

Please invite your friends to join our circle to stay in the loop on what's happening in the CF community!
 
Together, we can help make “CF” stand for “Cure Found!”
 
----

Posting Policy for Cystic Fibrosis Foundation's Google+ Page:

We welcome you to our Google+ page and we hope to hear from you often! It is our goal to provide you with a forum for dialogue and an opportunity to learn more about the progress being made toward a cure.

It is important to note that individual medical questions are best answered by your CF doctor. You should not rely on information posted on our page to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on this page. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law.

To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. 

In accordance with Google+’s rules, users must be 18 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 18 will be deleted.

Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page.

All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_​​terms_and_conditions/#Policy_​​on_Intellectual_Property.

Contact Information
Contact info
Phone
800-FIGHT-CF