Profile cover photo
Profile photo
Wendy Wyatt
26 followers -
Wendy Wants To Wander
Wendy Wants To Wander

26 followers
About
Communities and Collections
View all
Posts

Post has attachment

Post has attachment
My eyes have been drooping more. My neck is weak. I am weak all over. Sometimes my voice starts to go, then comes right back. I don't know if I will be getting better....or worse, so figured I had better make a video to keep track.

Post has attachment
Wow! What a difference a pill can make :-) I feel way more alive. I am glad to have gone through this experience, even though it was unpleasant. From February to now I have felt life before and after IVIg, before and after steroids and before and after Mestinon. The toughest part was no meds at all. But....I made it and am here to talk about it. Yay!!!!!!!

Post has attachment
I came home and considered my options. Should I hold off on Mestinon and start Medrol first thing tomorrow or should I take Mestinon and see if that makes me better. I finally popped a Mestinon and then forgot all about it as I was immersed in other stuff. Then I realized that for the first time in a long time, it didn't hurt so much to breathe. Yay!!!!

Post has attachment
I am weak. I am looking forward to being stronger tomorrow! If I had to live my life being this weak, with no treatment in sight, I would be very, very sad :-( Hopefully all my meds are out of my system enough for a good SFEMG test. We will see.....

Post has attachment
Wow! Soooooo tired. I sleep many hours, then nap several hours and I am still wiped out tired. I find myself very weak and the longer it goes on, the more every single activity of living feels like too much work. I have felt no desire to even try to talk. It's painful to take deep breaths. My eyes mostly see a big blur. I realized that my eyes and mouth are drying up. Mestinon causes more watery secretions. Mestinon also helps with gastroparesis. My guts are not happy without Mestinon. Now I am having diverticulitis pain in my intestines. I hope there's not a new hole. Sigh....a sloth moves fster and feels more energetic than I do.

Post has attachment
i feel like my body is a combo of lead and jello. Moving my head and limbs is tough because they feel like lead weights. I feel like I am moving through and breathing in jello. Everything is an effort. Olive the cat is awfully worried about me. She must be able to tell something is wrong.

Post has attachment
I am better today than yesterday. I slept more than 8 hours, then napped more than 4 hours. Going without Mestinon is exhausting. Just sitting in my comfy chair takes all my strength. My vision is so double and blurry, that reading is difficult. Breathing is painful, but I can do it! :-) My ribs are not amused, though. I am looking forward to the day next week that my SFEMG test is over with. I am going to pop a Mestinon before I leave the hospital. 

Post has attachment
I think I got run over by a truck. I can barely pick my feet up and I am weak all over. Ugh 5 more days of this until my test. It's interesting to see what happens to me, but dang....I am ready for an IVIg right now!

Post has attachment
It has been interesting to see what happens to me without Mestinon.
Wait while more posts are being loaded