Profile cover photo
Profile photo
Trish Hughes Kreis
83 followers -
caregiving. family. advocacy.
caregiving. family. advocacy.

83 followers
About
Posts

Post has attachment
2018: Goodbye Awful, Hello Gratitude
I fully intended to write about the awfulness that was
2018.  For most of the year, I have been
saying it has ranked high on the list of “worst years ever.” After all, 2018 brought us Carol passing out in
our dining room and smacking her head – lying uncons...
Add a comment...

Post has attachment
Respite: Let’s Do This Again
Richard and I have cared for Robert for ten years and five
of those have been in our home.  Robert
loves to say “cheers” at dinner and usually says “cheers for our drinks” or
“cheers for a good dinner” but recently threw out “cheers to family.”  He didn’t s...
Add a comment...

Post has attachment
Respite: Just What the Doctor Ordered
It took until the day I dropped Robert off at the facility
to really believe Respite was happening! 
Getting respite shouldn’t be as difficult as it is but that’s a whole
other post for another day. I want to share snippets of our days so that if you can’t
...
Add a comment...

Post has attachment
Video EEG: Process, Results and Decisions
A
lot has happened since Robert’s video EEG in
April and it all affects the direction we go with Robert’s treatment.   Caregivers make decisions every day about
treatment and everything needs to be considered: how treatment will affect our
loved one and the...
Add a comment...

Post has attachment
What better way to create some fun while caregiving? Thx to the police lip sync challenge for inspiring us!
Add a comment...

Post has attachment
What This Caregiver Misunderstood About Self-Care
As
a caregiver, I know the importance of self-care.   Heck, my friends and co-authors have written
books about it! I
know, really know , how critical
self-care is for caregivers.   It
is extremely important for caregivers to find a moment to breathe.   To c...
Add a comment...

Post has attachment
Accepting help is tough for me but not for the reasons you might think.
Add a comment...

Post has attachment
Making Changes and Even Accepting Help
Let’s get this out of the way first:   Yes, I still have some residual numbness and tingling from my small stroke .   I wake up every day assessing my numbness.   Thankfully, the intensity is getting less and I rarely feel like I have a fat lip but my face ...
Add a comment...

Post has attachment
Add a comment...

Post has attachment
Don’t Freak Out but I Had a Stroke
Yep,
that’s what I have been saying to people lately.   I look the same but, yes, I had a
stroke.   Not a TIA but a small
stroke.   My episode in March now
appears to have been a TIA. I
am okay and I am very, very lucky.   The
stroke was an Ischemic
Stroke ...
Add a comment...
Wait while more posts are being loaded