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Manitoba Neurofibromatosis (MBNF)
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New Friends make the difference
New Friends make the difference

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Here is a great website to learn more about NF!
NF Midwest's new website has some great iNFormation on neurofibromatosis. Be sure to take some time and look around. Click here to see our LEARN section. https://www.nfmidwest.org/learn-about-nf/

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Thanks for raising NF awareness Libby! Wishing you much health and success.
We are so proud of Libby, an NF Midwest member from Fort Wayne, who is in Los Angeles right now filming an episode of The Doctors. Libby will be sharing her NF story. Including her efforts to raise awareness and her struggles for better medical care. The Doctors airs on CW. We'll let everyone know the date that the episode will be airing.
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The latest episode of Scream Queens has the NF Community speaking out. Many views and angry posts are showing up in social media feeds.
Did You Kiss A Toad?
So, I have stayed relatively quiet here for the last few months.  But today, after hearing about this episode of Scream Queens, it spurred some inspiration. Overall....I think the episode did what it set out to do.  (I am NOT saying it did a good job) Aside...

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Will you join us for this year's Run for NF in Lockport? View last year's video and click registration link to learn more. We look forward to seeing many of your again soon!
https://www.events.runningroom.com/site/?raceId=12982

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This family blog post shares an amazing NF victory. Neurofibromatosis (NF) causes tumour growth. The plexiform tumour is an extremely scary type of tumour that can grow large and invasive. So far drug trials have been unsuccessful...until now! So thankful to see Philip's neck tumour shrink by 36%. Thank you for spreading NF awareness and being brave enough to be a part of these trials that will benefit many in the future. Prayers for continued amazing results and strength for all of your family! (Tracy)
Long Overdue post
We have become so accustomed to social media now that we rarely post on our family blog anymore.  The Moss family has been busy living life to the fullest, with both children doing well in second and fifth grade now.  Philip enjoys varsity level chess and i...

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Another great blog post by Kristi, an author and dedicated advocate about NF. 
Lesson Learned
In 'every day life', my NF stays relatively quiet.  I go about my day just trying to survive the craziness.  I wake up, go to work...come home, spend time with the family...Go to bed, and begin again. Good days...Bad days....I just take them as they come. M...

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We learn from our failures. We can not advance and grow if we do not try. Develop a plan and go for it! 
Author, unknown.

Your Story Is Your Medicine
http://www.theuglydaughter.com/episode-16/

Your story is your medicine. Your suffering is part of your sacred experience.
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Vitamin D is important for people living with Neurofibromatosis. Do you supplement?
Both women and men need calcium and Vitamin D to keep their bones healthy. How much and how do you get it? The graphic below shows some calcium-rich foods. Check out this NIH fact sheet for more info: http://www.niams.nih.gov/Health_Info/Bone/Bone_Health/Nutrition?WT.mc_id=social_niamsgplus
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Celebrating our support group as we raise NF Awareness. This video highlights MBNF's year in 2015.
PS. A special thank you goes out to Mike at Centric Productions for his continual support.

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We are always excited when MAY rolls around, as it IS our official NF AWARENESS MONTH! Neurofibromatosis is a genetic disorder that gets little attention but affects 1 in 3000 births with tumor growth. Please help us spread NF awareness by sharing this post and our website. www.MBNF.ca 
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