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Sarah Wells
25 followers -
EDS, CMT and me...
EDS, CMT and me...

25 followers
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This is Kipper.  Yesterday Kipper danced in his annual dance show.  This was after spending the last week away on his year 6 residential trip to PGL.  Mum thought that Kipper would be tired for the show but he was a complete superstar. This is Biff. …
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From adrenaline to Zebra and everything in-between.
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The A-Z of Ehlers-Danlos syndrome (EDS) in pictures.  From adrenaline highs, mast cells and slipping rib syndrome to the zebra mascot. Do you know everything about EDS? Please share far and wide! Let’s make people aware that EDS is far more than having…
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Grab a cuppa and I’ll attempt to explain why we are supporting the #MillionsMissing protest on Saturday May 12th 2018. My son has been diagnosed with Myalgic Encephalomyelitis/ chronic fatigue syndrome.  Having symptoms of chronic fatigue for years…
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Help wanted. Hours must be flexible, pay poor. This job will interfere with your social life. Those with a morbid fear of doctors need not apply. The sheer amount of time that I spend ferrying myself or the kids to and from hospital appointments is…
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££££ Terminal 5, London Heathrow Airport, Hounslow, TW6 2GD  +44 2035899658 Awarded 3 AA Rosettes, La Belle Epoque at Sofitel London Heathrow is the airport’s only fine-dining restaurant. Gourmet French cuisine draws from eclectic world influences.  The…
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Caring for a sick kid or kids when you have your own chronic illnesses to deal with can be one of the hardest things you will ever have to do.  I find myself repeatedly ignoring the warning signs that my symptoms are spiralling because I simply do not…
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At this time, research statistics of the Ehlers-Danlos syndromes show the total prevalence as 1 in 2,500 to 1 in 5,000 people. However recent clinical experience suggests that Ehlers-Danlos syndrome may be much more common. Unless you know someone with…
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[su_pullquote]Having two lives, one of which you do not want other’s to know about. The life that everyone believes is your “true” life is one of complacency and subtlety, one in which the person is generally unassuming. However, in the second, “secret”…
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I must admit this morning I’m having a bit of a meltdown. Schools again are causing me stress.  Different schools, different reasons, different children. I’m in the midst of hunting for a secondary school for my son and I am trying desperately hard to…
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