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Ronny Allan
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Cancer Campaigner, Award Winning Patient Leader
Cancer Campaigner, Award Winning Patient Leader

19 followers
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The treatment of liver metastasis is a common approach following metastatic diagnoses or discovery of liver metastasis downstream via re-staging.  In addition to surgery, there are several liver directed therapies available via embolization techniques. …
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PDR001 (anti-PD-1) is an investigational immunotherapy being developed by Novartis to treat both solid tumors and lymphomas (cancers of the blood).  It is currently being trialled on many cancers including Neuroendocrine.  It’s brand name is SPARTLIZUMAB.…
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While it’s a long way off becoming reality, this is quite an exciting clinical trial. I have no idea if it will pick up Neuroendocrine disease but initially, patients with suspected oesophageal and stomach cancers will be asked to try the test. Later it…
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Advanced Oncology Formula enterade® – a breakthrough for NET Patients?

Diarrhea is a huge subject for NET patients, whether it’s caused by the tumor itself (i.e. a syndrome), due to treatment, knock on effects of treatment, or some other reason, it can dramatically limit qualify of life.  Working out the root cause can be…
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Neuroendocrine Cancer - it may be slow growing BUT .....

I have a lot of be thankful for – I’m still here for starters! …….. but here’s a list of 10 things I’m NOT thankful to Neuroendocrine Cancer for! Thanks for growing inside me for years before making your vague announcement Sorry too late – I’m metastatic…
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I campaign hard for Neuroendocrine Cancer awareness including continually pointing out that a Neuroendocrine Cancer with a pancreatic primary is NOT Pancreatic Cancer as is often quoted in the press.  The two main reasons I take up these campaigns are as…
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How to Talk to a Cancer Patient Without Being a Complete Twit

I enjoyed reading these 8 rules because I think much of it is written with ‘tongue in cheek’ – great title! In UK we might even spell the word ‘twit’ slightly differently (UK people will get it!). Some of the rules are directed at doctors and I’m sure…
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I would love to go to a NANETS conference but I would need sponsorship or even fund my own way there. Seattle sounds like a great place to visit. I would even have been their twitter correspondent had they asked! I’ve been to the European equivalent…
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There’s a Brit saying of “on your bike” (sometimes colloquially called “on yer bike“).  It basically means “go away and stop bothering me” but there are other definitions including some ‘Anglo-Saxon’ versions (I won’t repeat those here!) When I moved to…
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