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Robert Moore
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Forgive me for being self indulgent but..... news alert! (And it's not 100% about El Bastardo AKA the tumour) Anyway, last week I asked the wonderful Clare Robertson to marry me and she said.... no :-( Only kidding, she said yes of course! We had a lovely meal at a place called Canada Wood just outside of Falkirk (recommended BTW) then Clare drove us to the Kelpies which were lit up in the dark of the night sky, I played the Amelie soundtrack on my phone, got down on one knee as best I could, said a few words which I'd prepared and proposed. It was a total surprise to her! There's no date or venue yet for the big day, I've got a scan later this month and a meeting regarding that in March which will probably shape any decision we make. Clare's really happy as am I! So errr that's it! There were a few mishaps along the way, from the typical Scottish weather almost interfering with my plans, to my concerns about being able to stand up again after getting down on one knee (honestly my balance is shocking now), but these were overcome and my choice of ring has gone down rather well. I'll include a picture in this post. Bigly thanks to my mum and dad for keeping the ring hidden for me, Clare's brother Andrew for measuring Clare's fingers whilst dressing it up as a mock medical examination and Marie Butler for her advice on ring buying.

Anyway TTFN self indulgent post over!

Robbie x

P.S TLDR We got engaged!
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So I said I wasn't going to use Social Media as a tumour update blog. About that..

So I got the results of my scan yesterday. And it's good news! The tumour has stalled its growth for now. I've just started cycle 4 of chemotherapy and so far (touch wood) it's doing what's intended. As for my current condition, I don't have any balance so I can't really walk anymore (So I'm not heading out to any raves!) and my dodgy vision is back. But things could be a whole lot worse - I've currently got no headaches, no vomiting and thankfully no fits to date. So aside from potential sniffles you're welcome round, just message me first! Oh and my voice is not what it was, so forgive me for my crap patter - not that it was any good in the first place! Anyway, I just wanted to say a big thanks for all your messages of support. These past 2 and a half years haven't been easy - there have been challenging moments. With your help, my girlfriend and my family it's made it a lot easier. As I've been prone to saying lately "it is what it is". Focus on the present, not on the past.

Robbie 

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I'm sorry but wtf is this?

So, I did say I wouldn't use social media as a tumour update blog, but it turns out I don't post much these days (aside from my Brexit rants) so here goes...

First of all the bad news. The tumour has grown. What this means in a practical sense is that my balance has gotten significantly worse. Before I'd occasionally veer left or right but could probably manage without looking too much like I'd just stumbled out of the local at closing time. Now anyone who sees me walk would assume I'd been heavy on the whiskies and spirits and maintaining any kind of straight line is pretty much impossible unless I shuffle around slowly or get somebody to give me a hand. I've got a stick now, which I haven't really used too much except indoors. I've gained a new found appreciation for seats or benches too. I don't walk around much these days! Also I've found myself affected by fatigue much more significantly. Apologies if I've cancelled on you/been slow to reply to messages. My enthusiasm for doing much of anything is severely diminished by tiredness. My standard instinct is just to snooze or watch awful TV on the couch!

And now for the good news. As the tumour has grown they've reintroduced me back on to steroids which had definitely given me an energy top up. I'm not perfect, but I am better than I was only a week or two ago. In addition I've just started chemotherapy. It's oral chemotherapy as opposed to IV, so I can just take some pills at home without having to be hooked up to a drip, which is definitely a relief! It looks like I won't lose my hair (yet!) though I've been steadily losing it through the natural process of male pattern balding for years anyway! Hopefully the chemo won't leave me feeling too unwell. This is all very new to me though, so we'll just see how it goes. I probably won't be out a huge amount over the next few weeks, but you're always welcome to drop past, send me a message or email me. If I don't get back to you instantly, don't worry, it's just me being me. Anyway, after 3 months there'll be another scan and hopefully the chemo will do it's thing. They don't expect that it will cause me to go into remission, but if it just keeps things stable that's something I can live with. As of now, I still have quality of life and I'm not in pain.

Throughout the last two years, my girlfriend Clare has been amazing. These past few weeks have been especially challenging but she's kept me positive and hopeful. Ditto my amazing family and friends. Anyway, onwards and upwards!

Robbie x

Happy Birthday +Christian Ghanime​! 

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I took this at a viewing point on the A82 near Glencoe. Typically Scottish, from the weather to the barren landscape and muted colours.
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Cool auto awesome of Urquhart Castle on Loch Ness.
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Wow. As auto awesomes go, this is a stunner. Thanks Google!
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Alright G+  people (and advance apologies for another long post)

I sorta promised I wasn't going to use this place as a self indulgent "tumour update blog" and I was going to post more stuff in general, but so far I've been fairly crap at that. And so here's my latest update..

I had a follow up MRI scan last week which was timed to coincide with the end of my radiotherapy by 3 months - and I got the results of that scan this week. The great news is that although the tumour hasn't shrunk, it has stalled and it hasn't spread! Which was pretty much the best news I could hope for. They want me to return after 4 months for a follow up meeting but until then I'm pretty much left to my own devices. What all this means practically is that my symptoms haven't changed much and are unlikely to change (daily vomiting, double vision, tiredness, dizziness) but things shouldn't get too much worse in the short term. And there's plans to do things to tackle my symptoms such as Botox!! for my vision, alternate medication for my sickness and making sure I have a more regimented diet and exercise plan to combat the tiredness. So you never know, whilst I may never get back to full normality again, If I can get closer that's a blessing.

Anyway, one more thing before you can go back to normal service! Quite a few of you asked what you could do and I said very little beyond maybe hanging out or giving money to charity. Well for the latter, my girlfriend is doing a 10k run to support fundraising for a brain tumour charity alongside her friend Rosaria whose dad was also diagnosed with a terminal brain tumour last year. If you could donate anything, even £1 I would really appreciate it. To those who already have, my heartfelt thanks - it means a lot. They hit their target of £500 within 24 hours, so the goal is now £1000! I'll pop the link below.

Hope you are all well and having an amazing 2015 so far!
Robbie x

https://www.justgiving.com/Rosaria-Votta

Oh noes, crisis at Tesco. They'll only make £1.4 billion profit this year. Looks like I'll have to redefine my understanding of the concept of "crisis"...
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