First of all the bad news. The tumour has grown. What this means in a practical sense is that my balance has gotten significantly worse. Before I'd occasionally veer left or right but could probably manage without looking too much like I'd just stumbled out of the local at closing time. Now anyone who sees me walk would assume I'd been heavy on the whiskies and spirits and maintaining any kind of straight line is pretty much impossible unless I shuffle around slowly or get somebody to give me a hand. I've got a stick now, which I haven't really used too much except indoors. I've gained a new found appreciation for seats or benches too. I don't walk around much these days! Also I've found myself affected by fatigue much more significantly. Apologies if I've cancelled on you/been slow to reply to messages. My enthusiasm for doing much of anything is severely diminished by tiredness. My standard instinct is just to snooze or watch awful TV on the couch!
And now for the good news. As the tumour has grown they've reintroduced me back on to steroids which had definitely given me an energy top up. I'm not perfect, but I am better than I was only a week or two ago. In addition I've just started chemotherapy. It's oral chemotherapy as opposed to IV, so I can just take some pills at home without having to be hooked up to a drip, which is definitely a relief! It looks like I won't lose my hair (yet!) though I've been steadily losing it through the natural process of male pattern balding for years anyway! Hopefully the chemo won't leave me feeling too unwell. This is all very new to me though, so we'll just see how it goes. I probably won't be out a huge amount over the next few weeks, but you're always welcome to drop past, send me a message or email me. If I don't get back to you instantly, don't worry, it's just me being me. Anyway, after 3 months there'll be another scan and hopefully the chemo will do it's thing. They don't expect that it will cause me to go into remission, but if it just keeps things stable that's something I can live with. As of now, I still have quality of life and I'm not in pain.
Throughout the last two years, my girlfriend Clare has been amazing. These past few weeks have been especially challenging but she's kept me positive and hopeful. Ditto my amazing family and friends. Anyway, onwards and upwards!
Seriously though I hope that chemo kicks it in the tits. If you need anything we're always here bud!