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Mary O
Works at Pender United Methodist Church
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Mary O

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From the Cushing's Awareness Challenge: "There are actually two types of Dexamethasone Suppression Tests (Dex) used in diagnosing Cushing's, a high dose and a low dose test. There are some differences in procedure, timing, and...you guessed it...dosage.  I'm not going to go in-depth on the procedures of either, but more give a brief overview of what the test is, what they're looking for, and it's downfalls..."
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Mary O

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Originally posted on a tale of two tumors:The Gallium-68 scan I had last week was read as clean.  This is good news and bad news.  The good news is that I am not full of tumors.  The bad news is that the scan didn’t locate a single tumor in my thymus or…
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Mary O

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I carry a print out of this everywhere I go because I find it very soothing.  This print out is in a plastic page saver. On the other side there is a Psalm 116, part of the post from Day Nineteen.  These days, both these readings are available on my…
I carry a print out of this everywhere I go because I find it very soothing.  This print out is in a plastic page saver. On the other side there is a Psalm 116, part of the post from Day Nineteen. ...
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Mary O

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(Reuters Health) – After stopping steroids commonly prescribed for asthma and allergies, a significant number of people may experience signs of malfunctioning in the adrenal glands, a European study finds. So-called adrenal insufficiency can be dangerous,…
(Reuters Health) - After stopping steroids commonly prescribed for asthma and allergies, a significant number of people may experience signs of malfunctioning in the adrenal glands, a European stud...
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Mary O

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From the Cushing's Awareness Challenge: "There are a number of health reasons why I want to lose about 75-80 lbs. but I'm tired of complaining and having negative vibes hanging around. So today I want to talk about all the FUN reasons I want to lose weight. Some of them will be superficial..."
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Mary O

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    If you want to adopt a piano, here’s a site that lists free pianos! Please be aware that a piano, new or old, will need to be tuned after it is moved into your home.  There will also be moving costs.  Most movers charge extra if you need to move a…
    If you want to adopt a piano, here's a site that lists free pianos! Please be aware that a piano, new or old, will need to be tuned after it is moved into your home.  There will also ...
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Have her in circles
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People, especially students, are often surprised that I still take piano lessons.  There seems to be a consensus that adults, especially piano teachers, know everything already.  Well, no.  There is always more to learn. Each pianist and teacher has…
People, especially students, are often surprised that I still take piano lessons.  There seems to be a consensus that adults, especially piano teachers, know everything already.  Well, no.  There i...
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Mary O

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From the Cushing's Awareness Challenge: "Not having enough growth hormone and not having enough thyroid hormones can each make you feel really bad – they both could definitely be reasons I am so exhausted all of the time and why I can’t seem to lose any of my Cushing’s weight too (illness has not impacted my vanity yet).   So, fixing both problems should help with at least some of my symptoms.  The carcinoid issues (e.g., flushing, coughing) are still another matter."
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Mary O

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  . 1906 ~ John Knowles Paine died.  He was the first American-born composer to achieve fame for large-scale orchestral music. . 1913 ~ Earl Bostic, Saxophonist, bandleader . 1915 ~ Italo Tajo, Italian bass . 1915 ~ Sal Franzella, Jazz musician, alto sax,…
  . 1906 ~ John Knowles Paine died.  He was the first American-born composer to achieve fame for large-scale orchestral music. . 1913 ~ Earl Bostic, Saxophonist, bandleader . 1915 ~ Italo Tajo...
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Mary O

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From the Cushing's Awareness Challenge: "It is amazing to see how much my children have had to mature because of me. They are growing up so fast and getting very mature.  They know how to handle many difficult medical situations now. We are also working on an emergency plan for any kind of situation they can think up that they aren't sure of what to do yet.  They always want to be prepared and for that I am very proud of them."
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Mary O

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From the Cushing's Awareness Challenge: "Serum Cortisol Binding Globulin (CBG) is another simple blood draw.  This one you don't do often, but just so your endocrinologist can get a feel for whether your CBG is high, low or normal..."  
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Hello all, I’m Michelle mother of 3 beautiful children, I work part-time, 33yrs young, non-smoker, non-drinker, overall health is good for the most part…..Where do I even begin. I just recently received the diagnosis of cyclic Cushing’s. I’m not really…
Hello all, I'm Michelle mother of 3 beautiful children, I work part-time, 33yrs young, non-smoker, non-drinker, overall health is good for the most part.....Where do I even begin. I just recently r...
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People
Have her in circles
95 people
Ken Deutsch's profile photo
S E Nunamaker's profile photo
Gail Steele's profile photo
Tammy Dinwiddie's profile photo
Michael O'Connor's profile photo
Judy Kennedy's profile photo
Philip Butler's profile photo
Christina Powell's profile photo
Sheryl Bentley's profile photo
Basic Information
Gender
Female
Apps with Google+ Sign-in
Story
Tagline
AKA just MaryO. I'm a Cushing's and kidney cancer survivor
Introduction
I've dealt with Cushing's and it's aftereffects since the early 1980's and with renal cell carcinoma (kidney cancer) but I have now passed the golden 5-year mark.

I like playing piano, piano duets, handbells, singing.  Pretty much anything musical.
Bragging rights
Survived Cushing's and cancer
Work
Occupation
I mostly work with computers and websites. I also teach piano.
Employment
  • Pender United Methodist Church
    Web manager, 2012 - present
  • The Tom O'Connor Group
    CFO and webmaster, 2012 - present
  • OConnor Music Studio
    Owner, 1972 - present
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Mary O's +1's are the things they like, agree with, or want to recommend.
Testing for Cushing's, Dex
muskegfarm.blogspot.com

There are actually two types of Dexamethasone Suppression Tests (Dex) used in diagnosing Cushing's, a high dose and a low dose test. There a

Advise from my 12 year old daughter
zebralady72.blogspot.com

So, I have been having some bad episodes lately. My blood sugars have been going extremely low. This has caused me to pass out a few times.

Testing for Cushing's, CBG
muskegfarm.blogspot.com

Serum Cortisol Binding Globulin (CBG) is another simple blood draw. This one you don't do often, but just so your endocrinologist can get a

Testing for Cushing's, ACTH
muskegfarm.blogspot.com

Serum Adrenal Corticotropin Releasing Hormone (ACTH) is a hormone produced by your pituitary. This hormone signals the adrenals to produce m

Cyclical Testing
lessofkristin.blogspot.com

Well the response I received from the physicians assistant wasn't quite what I expected. As I told you the other day, my results were loaded

More testing, more results
lessofkristin.blogspot.com

Hi All. As I told you last week I had to go back for another cortisol test, another TSH and whatever else the doctor saw fit. So I was notif

Testing for Cushing's, MN Serum Cort
muskegfarm.blogspot.com

Midnight Serum Cortisol is a simple blood test that can be a good diagnostic tool for Cushing's Disease or Syndrome. You see, cortisol shoul

My mimi
lessofkristin.blogspot.com

Last Wednesday morning I woke up from a very vivid dream, in which my grandmother visited me. When I say she visited me, I mean her spirit,

Movie Monday
lessofkristin.blogspot.com

Hello All-- I have been told that there was a great National Geographic special on Cushing's Syndrome, and I wish I could find the whole thi

Testing for Cushing's, 17 ohc/17 ohs
muskegfarm.blogspot.com

24 hour 17-hydroxycorticosteroids (17 ohc/17ohs) is a test that used to be the gold standard back before my time, was all-but thrown out whe

Testing for Cushing's, 24 hour UFCs
muskegfarm.blogspot.com

24 hour urinary free cortisol (UFC) is considered a gold standard by most doctors. Basically, you are given a urine collection jug, void at

Testing for Cushing's, Introduction
muskegfarm.blogspot.com

I started this blog post during last year's Cushing's Awareness Blogger's Challenge in April, and never finished it because it felt like a H

Inflammation
lessofkristin.blogspot.com

You know that feeling when you've been on your feet all day and you come home and take your shoes and socks off, put your feet up and notice

Growth Hormone Deficiency in Adulthood and the Effects of Growth Hormone...
muskegfarm.blogspot.com

This isn't Cushing's-specific, but MANY of us have Cushing's Disease which is caused by pituitary tumors...and tumors are apparently the #1

Now what??
lessofkristin.blogspot.com

Well.... I went in today for the repeat TSH and morning cortisol tests. I'm not sure what to do now because like 18 months ago I told my PCP

survive the journey: Cushing's Awareness: Testing
survivethejourney.blogspot.com

What I want to do today is outline basic tests that most endocrinologists use for the diagnosis of Cushing's. The following chart may help u

Nerdy Zebras
muskegfarm.blogspot.com

We spent the last night of our trip with one of my sisters-in-law, and she pulled out this absolute beauty: I never was a dedicated fan of z

24hr UFC's
lessofkristin.blogspot.com

are no fun. I actually did my 24 hour urine collection a few weeks ago, in March but I wanted to share with you what it was like, and how it

survive the journey: Cushing's Awareness: Pituitary hormones and disorders
survivethejourney.blogspot.com

Endocrine disorders usually involve a lot of testing, I thought I would spend some time the next few days talking about some of those tests.

Adrenal Insufficiency and Adrenal Crisis
muskegfarm.blogspot.com

Today I want to share a link to a fact-sheet about Adrenal Insufficiency, Addison's Disease, and Adrenal Crisis. I'll give you a list of the