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Lori Friedrich
56,441 followers -
Life's about being social!
Life's about being social!

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Please help if you can. Help can be a donation or helping spread the word. Every action helps!
And sometimes, you have to find the courage to ask for help ...

So, I've run out of options and need help.. Every bit of savings, every plan, every back up plan and every back up for those back ups have failed me and i am asking for help.. Very soon i will be in desperate need of help.. So I will be grateful for every dollar and any help anyone can send me.

The story is long but familiar... I've spent that last few years battling an illness, a long, painful, incurable illness that is destroying my bones and causing often untreatable pain, stiffness and fatigue.. Ive been lucky in many ways. I have great doctors, I've had good medical insurance and i've had the support of family and friends.. Ive even kept a small flexible part time job that made many accommodations to keep me there and working :).. and for whome ive made many adjustments as well.. It has helped me weather many storms.. .

Over the last few years things have changed a lot.. Iv'e lost a few friends and support people.. This happens a lot when you have a chronic condition.. People help when they can but they move on .. You cant fault them for that.. just wish them well .. and find other ways to cope.. My treatments stopped working . . Another thing that happens a lot.. We've had to add others treatments and allow them time to work.. often three to six months or more and often with a whole new host of side effects and some limitations.

And then came complication after complication .. a partially torn meniscus in my right knee.. (which took months to heal.. but never really did) a mysterious depletion of my Iron levels which led to needing months of iron infusions and a return to a heart rate that can top 200 beats per minute without warning.. . And now a second depletion of my iron for which i will soon be tested to see if it is being held in my bone marrow and not being used as it should (yet another common complication of inflammatory illnesses). To add insult to serious injury lol, One of the treatments (methotrexate ) caused an erosion of my esophagus, stomach and small intestines, the pills, though tiny, are so caustic, and im possibly so inflammed that they went through my system burning my throat, stomach and upper intestines on the way down .. Which landed me a short stint in the hospital for diagnosis and testing .. then more time at home trying to recover. (Months again sadly). My private disability insurance failed me in the most spectacular way at that time, as they insisted on so much documentation from every doctor that my payments (already only 60% of my earnings) were held up so long that i exhausted what little i had saved, and still fell behind so drastically that i had to beg them to do anything as i had no money to keep up with all the doctors visits they insisted that i keep.. sigh.. There are now.. new complications... My right shoulder is getting increasingly worse, and my right hip seems to have redeveloped some type of painful spur or tendon problem. I see my Doctor November 1st.. We will look at my latest bone scans.. :/

The last really huge setback has been my old stand by.. The local part time job that has always been a quick way to begin catching up and getting back on my feet.. It wasnt a glamorous job .. but it was flexible and available and willing to work with me and my medical visits and complications.. However.. a little over a week ago.. it sort of .. blew up.. It was a small local branch of a large restaurant chain.. and the explosion was so deep it could be felt a half a mile away.. The damage was extensive.. but they are rebuilding.. However.. i am now instantly without a safety net, they have offered us jobs at other locations which seemed like a great offer.. until we discovered the other locations are expensive to reach, smaller and almost fully staffed (no transportation costs have been offered.) The other locations do not have space or volume to absorb the 110 people who worked at my location.. so not only has the travel increased but they cannot offer us the hours .. and the company has not paid us anything from the day of the accident on.. the offer of employment at other locations was the sum total of their help..

They have made no announcements within the company.. They are not doing anything else on our behalf.. If i am reading the unemployment site correctly that eliminates our ability to apply for unemployment benefits.. especially since they keep scheduling us, making it seem as if we have options we arent taking.. Our company also has an emergency program to help employees in need.. to which we all donate (well most of us).. I called them, and was told there was nothing they could do for us.. I have sent a second email to my regional manager.. Im waiting for a reply... I dont expect a good one.. It looks as though we have been left on our own.. Im sort of devastated by this latest move as i've been with that company for almost 15 years off and on.. and so have many of the other 100 + people who work there.. Im told that even those who were hit by debris in the explosion are being denied workers compensation.. I will keep exploring this avenue.. but it looks like not only have they refused to even pay out the time for which they had us scheduled.. but they are using the offers of employment to keep us from getting any help while we wait the 2 months for repairs.. I dont think i am returning .. i need to get better and find another way to make money .. another saftey net..

So, Here i am .. no savings, no insurance, and needing another possible increase in the medication for my new treatment plan.. as well as a lot more testing .. I cant travel to the new locations, even if i can, they wont have room for me .. and it will take time to find a new job that will be close, flexible and able to work within my range of abilities ..

The newer complications mean i need more doctors visits and more testing.. My insurance has not only increased but so have the deductibles and copays.. I have undifferentiated spondylitis .. which is what they call Ankylosing Spondylitis before they have enough imaging, blood work and changes to make the full diagnosis (diagnosis takes an average of 10 years).. Disability is certainly in my future.. but so far not yet, so i need help.. lots of help.. i need to be able to pay for my living expenses, my medical treatments and keep working towards a possible remission while i find a new flexible position with a better company.. Maybe one that cares a bit more this time .. $6000 is enough to keep me a float for about two months.. If by some miracle i get more than this goal i will pay it forward as best i can to those other 109 people who instantly lost their jobs and are trying to feed their families too.. Any amount helps.. small steps help.. Even if you cant help.. send some prayers and well wishes my way :) at this time.. it cant hurt us.. and we need every bit of help we can get..

Thanks for listening everyone, even if you cant help.. i know many of you are with me ..

Thanks again,
Mari
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Thoughts on AI

Ethical companies implementing machine learning to fuel their AI anonymize the data generated by subscribers by keeping personal data in separate tables from the usage data. By siloing in this manner, each set of data works simultaneously and congruently. Marketing can target users based on things like membership, frequency of interactions (logins, shares, etc), but not on the details of the activities. The machine learning side uses their data set to contrast, compare, find patterns, adapt and learn, etc., making the program smarter and better.

That said, are there companies using your information/data against you? Yes. There are programmers not taking pains to do what I’ve outlined. Instead, they are taking the data as one complete set and then feeding their programmed AI to find patterns about YOU and learn things about you that you don’t know about yourself. From predicting your health to knowing what to feed you in social ads, to a myriad of manipulative tactics.

What can you do about it?

That is the larger question. Every day people are willing to give up their information for the chance to ‘insert action here.’ The best example I can give in this instance is, if you aren’t paying for it, you are the product. The false sense of privacy and ownership of one’s personal information, including thoughts, is indeed frightening. Maybe the idea of living in a cabin in the woods, completely off the grid isn’t so crazy after all?
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Happy Thanksgiving

It's not Thanksgiving until Arlo sings.
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If Twitter can find and suspend these troll accounts, why can't Google?

Official Twitter spokesperson statement: The Twitter Rules prohibit violent threats, harassment, hateful conduct, and multiple account abuse, and we will take action on accounts violating those policies.

It's time for Google to step up to the plate and enforce their user content and conduct policy. It's time for them to stop pushing all the onus on users to report (and then take little or no action based on some algorithm) and start taking real action on finding and removing these individuals!

http://mashable.com/2016/11/16/twitter-alt-right-anti-troll-suspended/#0hoQushDMqqF
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It's that time of the year again, and this year Santa's got a new look to his website!

It's That Time!

Elves Assemble! The Secret Santa website is a GO. You're sure to find a few bugs that we did not discover. Please be patient and report any issues then be patient while we work through them.

All previous records have been scrubbed from the database so everyone will need to register again.

Let's do this!

https://gplussanta.com/index.php
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No day is a waste if you learn something new

I remember those words, said by my wise grandmother. If you are like me and try to learn something new every day, here's an extensive listing of free online courses for you to use.

Let's make Nanny proud!

Full listing here: http://clk.ie/t667Tz
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Shenanigans Anniversary - thanks for the reminder, Google Photos!

+Susan Lewis +Pam Adger +Cecily Cooper +Suzanne Roberts
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9/28/16
3 Photos - View album
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Ladies, here's an opportunity to get a free ticket to Collision 2017. Please share with other Women in Tech.

http://wit.collisionconf.com/?kid=BNN2K
Want more women in tech?
Want more women in tech?
wit.collisionconf.com
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Why Mary Ellizabeth Williams is leaving Twitter.

This is only a small excerpt, I urge you to read everything she has gone through over the years.

When you look through a troll’s timeline, you rarely see a single focused target. They often spew in all directions, like a lawn sprinkler of vomit. Usually cloaked in their anonymity, Twitter’s dedicated trolls yell at strangers all day like it’s their job. Even when I got into a perfectly civilized disagreement with a male public figure, a swarm of his supporters swiftly smelled a fight and descended to tell me to die. I’ve spent my adult life trying, in my own small way, to be more signal than noise. And being persistently subjected to threats and abuse and just plain idiot drool is not what one would call a “user-friendly” experience, nor is it, by the way, what the founding fathers had in mind with the freedom of speech thing. I wouldn’t keep going to a restaurant that yes, often has great food but also regularly serves up plates of garbage. And when a business fails its customers, the customers leave.

Read the whole article here: http://clk.ie/vTTxWKH59
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