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Laura Chamberlain
Works at self-employed
Attended Kingston University
Lives in London
115 followers|531,596 views
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Laura Chamberlain

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Originally posted on The Self-Taught Author: I recently wrote about the Freedom of Information (FOI) request that the Information Commissioner upheld, ordering Queen Mary University of London (QMUL) to release the data requested from the PACE trial. I…
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Laura Chamberlain

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Brain Fog: My greatest hits #spoonielife #mecfs #spoonie #brainfog #pwme #spoonieproblems

While brain fog is not a symptom unique to the ME/CFS community (MS sufferers call it Cog Fog and those with Fibromyalgia call it Fibro Fog) it is one that can rule our lives at times. It is something that happens occasionally to everyone, but in…
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Laura Chamberlain

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Laura Chamberlain (aka @lauras_pen) takes the #chilliMEchallenge raising money for Invest in ME.

Apart from my specific nominees mentioned in the video, anyone who watches this is also nominated to raise awareness and biomedical research funds for ME/CFS by EATING A CHILLI ON VIDEO FOR MY AMUSEMENT & donating £4 for vitally needed research (instructions below).

This is the illness both myself and my brother suffer from. We both suffered as teenagers, experienced a period of remission where we went to Uni, had a lot of fun and got on with our lives, but we were unfortunately hit by the illness again. Scientists are on the brink of some very exciting discoveries but it is mainly being funded by the charity sector, which is why this fundraising is so important.

so, here's what to do:

1. Eat spicy pepper or hot sauce (have milk ready). You do not need to eat a very hot one if you're not good with chilli. If you forfeit, please share the video and donate anyway!
2. Film your funny REACTION (don't cut off the reaction!)
3. Dedicate it to an M.E. sufferer (if you know one, you guys do!)
4. Nominate 5 others
5. Upload video on social media using hash tag #chilliMEchallenge
6. Donate to M.E. research: in the UK text CMEC73£4 (or change the last number to change donation amount) to 70070 to donate £4 to Invest in ME

(Or if you're not in the UK:
Ireland text HOT to 50300(€4)
USA & elsewhere www.gofundme.com/chillimechallenge)
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Laura Chamberlain

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Thai massage; not for ME (spoilers: it hurt) #spoonie #MECFS

Last week I learned two very important lessons. One: Thai massages are a lot more vigorous than I imagined. Two: They f***ing hurt. I should probably put a disclaimer in at this point. Alongside my ME I have what I’m currently calling “undiagnosed pain…
Last week I learned two very important lessons. One: Thai massages are a lot more vigorous than I imagined. Two: They f***ing hurt. I should probably put a disclaimer in at this point. Alongside my...
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Laura Chamberlain

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Quote from Norway's PM on ME:

"We haven’t had anything to offer to this group, and they have been met with negligence in the health care system. This is because there have been a lot of prejudices towards this illness; that this is the result of a psychologically, almost wanted illness”, Solberg said in her interview to Norwegian national television, NRK. “It really is a scandal. The patients have been met with a lack of respect just because we haven’t had enough knowledge. The worst thing is that we haven’t worked very hard to get this knowledge either. It is important that the health care system make research on ME a priority”.
An arts and crafts exhibition, "Creating my freedom", was organised by the Oslo & Akershus branch of the Norwegian Myalgic Encephalopathy Association and supported by the Norwegian government, ...
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Laura Chamberlain

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New blog: chronic illness and the loss of self #MECFS #MEawareness #spoonie #health #disability
ME/CFS made me lose my self-identity, but writing helped me find it again... I recently watched a BBC drama/film called 'The C word', about a woman called Lisa Lynch who had breast cancer and blogg...
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Have her in circles
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Laura Chamberlain

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Calling all UK #pwme & #MEallies I need 30 secs of your time to change our future #mecfs

Ok, so I bent the truth a bit there. It will take 30 seconds of your time if you skip what I’ve written, click this link, and sign the petition without reading what it’s about. If you don’t mind spending a few more minutes, let me tell you why this is…
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Laura Chamberlain

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Blog: I took the #chilliMEchallenge for Invest in ME. Can you take the heat? #mecfs #solvemecfs #spoonie #chillies

It has taken me a little while to post this to my blog, but this is me doing the #chilliMEchallenge which is raising money for research into ME. I hope it gives you a giggle. If you want to take part go here for some more info. And please keep reading to…
It has taken me a little while to post this to my blog, but this is me doing the #chilliMEchallenge which is raising money for research into ME. I hope it gives you a giggle. If you want to take pa...
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Laura Chamberlain

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My friend is raising money for Action for ME and RNLI

Just a quick post to say my lovely friend Rachel is running/swimming/cycling a triathlon in a couple of weeks and is raising money for Action for ME and the Royal National Lifeboat Institution. Not too long ago she was hobbling along on crutches due to…
Just a quick post to say my lovely friend Rachel is running/swimming/cycling a triathlon in a couple of weeks and is raising money for Action for ME and the Royal National Lifeboat Institution. Not...
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Laura Chamberlain

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A quick thanks to readers of my last blog post...

This is just a quick post to say thank you to everyone who read, shared and commented on my last post “Chronic illness and the loss of self”. I’m still slightly overwhelmed by the response, I’ve had just short of 350 views, the majority of which were…
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Laura Chamberlain

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Interesting new research into #MECFS from Australia. Also interesting to note the article suggests that pharmaceuticals may currently in the process of developing drugs to alter these ion channels.

Let's hope someone gets funding to try and replicate the study

#mecfs #health 
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People
Have her in circles
115 people
Jerry Hallgrimson's profile photo
sandesh shrestha's profile photo
Girls on film's profile photo
Jo Robertson's profile photo
Lidija Redovnikovic's profile photo
Rob Shah's profile photo
Chris Kunzler's profile photo
ivan wood's profile photo
Tom Pinnock's profile photo
Work
Occupation
Writer/ journalist
Employment
  • self-employed
    Novelist, 2010 - present
Places
Map of the places this user has livedMap of the places this user has livedMap of the places this user has lived
Currently
London
Story
Tagline
You would have to be half mad to dream me up
Introduction
I'm a writer/journalist from London. I am currently writing a dystopian sci-fi novel.
Bragging rights
I once jumped out of an air plane (with a parachute on)
Education
  • Kingston University
    Creative writing with Journalism, 2006 - 2009
Basic Information
Gender
Female
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  • WordPress