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Katrina McCullough
102 followers -
No Straight and Simple Road
No Straight and Simple Road

102 followers
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This is a sad and happy day. This is the last Blog Post I will hopefully ever to have to write on the subject of Joubert (or single parenthood). You have all been amazing and I could not have made it through these rough times without your love and support. Your prayers worked!! Thank you, thank you, thank you! We love you!
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What’s Next for Us? The Final Post...
First – I want to start by thanking everyone. This little blog of mine has had almost 15,000 page views. It was very therapeutic to share my story with the world. Those who know me know I am not a private person anyway – In fact, I’m what you call an “over-...
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Happy Monday Facebook! Here is blog post #3 of 4. The second the last one I will write. This one tackles the potential for what Joubert means if we want to have another child. There are a lot of misconceptions out there, and Terry and I remain wracked with tough decisions. But we remain hopeful as always. Thank you for reading. As always, we love you!
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What Does This Mean for Baby #2?
Family Pic at Ethan's 2nd Birthday party It means a whole lot more than we thought it did. For this blog post I'll just set it up like an FAQs page: 1. Are you pregnant yet? Ha! No. We are gearing up to start trying again for sure. We have loved being paren...
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Happy Facebook! Here is the final blog post, #2 of 4. This is all about Joubert itself: What it is, how bad it can be, and really how lucky we are! It's our way of sharing not just for us, but for all the families dealing with Joubert in all ranges of the spectrum.
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What is Joubert? How Bad Can It Be?
I feel in a way we've almost done a disservice to the families out there also dealing with Joubert Syndrome. I think people can look at Ethan and the progress he's made and think to themselves that Joubert Syndrome is not really that bad. And for that, we a...
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It's been almost a year and I'm doing this mainly to bring final closure to my fun adventure and answer all those remaining unanswered questions. In my usual fashion I will close out this blog with 4 posts answering all the questions and really helping to shed more light on Joubert and the struggles other families are facing
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Final Blogs Posts - Ethan Turns 2!
Ethan's blows out his candle! 8 long months have come and gone since I wrote my last blog update and so many things have changed, for the better! I have to be honest, when things are going well the inner need to share my plight diminishes exponentially. And...
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Ethan walks with his V-Tech Walker! My son has Joubert Syndrome, Ocular Motor Apraxia and Hypotonia. Now just shy of his 18th month, he is able to walk independently with his baby walking toy!  This and so many other achievements are really beginning reduce the stress and put more joy in our hearts!
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New School, New Achievements
I cannot believe my last blog entry was in June. We have just been doing so much traveling! But now, as we hit the end of August I find myself with my first free afternoon in months. I put Ethan down for a nap, took a brief nap myself, and now I am finally ...
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