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Jody de Vos
94 followers -
⚣ Photography, travel & outdoors enthusiast & music addict. Living with Motor Neurone Disease since 2nd July 2014.
⚣ Photography, travel & outdoors enthusiast & music addict. Living with Motor Neurone Disease since 2nd July 2014.

94 followers
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Jody's posts

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Gay Times
Very proud to be raising awareness on Motor Neurone Disease specifically in the gay community, which I believe may be a first, by sharing my story over a 4 page article in Gay Times. Thank you to  MND Association and Gay Times Magazine for making this all p...

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Paralysis, Mutilation & Cornwall!
The past month has been tough to say the least. I have discovered more and more things that I am unable to do as the disease increases it's pace. I wonder why my MND has to be so devastatingly destructive so quickly compared to other sufferers who have a ha...

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Telling It Like It Is... #FuckMND
Things are sadly slowly sliding even further down a slippery slope! (alliteration overkill there!!!). The last few weeks have been nothing short of tough. I even uttered the sentence (on my EyeGaze of course!) 'I can't wait to die so I can be at peace' on t...

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12 Months Ago ...
What a difference a year can make! This time last year I was still living in Sydney, Australia, newly medically retired and visiting the UK & Ireland seeing family & friends, and getting my affairs in order for the big reluctant move back to the UK 3 months...

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Smoking
I started the disgusting habit of smoking  back in 1991 at the age of 13. Looking back I don't know if it was a lame attempt to be 'cool' or just something to do to pass the time growing up in rural Ireland. Maybe it was a combination of both! After a year ...

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Happy New Year 2016
London Welcomes 2016 Watch: London welcomes 2016 with an 11-minute fireworks display and a rendition of Auld Lang Syne #HappyNewYear Posted by Sky News on Thursday, 31 December 2015

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Want to take part in next part of the Sheffield Support Snood project? Find out more on the blog #MND #getinvolved https://t.co/x8hdNHOfaM — MND Research (@mndresearch) November 23, 2015 Looking forward to receiving mine on 9th December so I can hold my hea...

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Decision Time
So back in March when I was living in Sydney, still walking, still working, having the time of my life despite feeling my MND slowly creeping up on me & knowing I was only months away from moving back to the UK, I bought tickets to go and see Madonna in con...

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My Travels
Various photo's & selfies from my travels over the years ... Posted by Jody de Vos on  Saturday, 3 October 2015
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