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Hugs for Hailey
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Hugs for Hailey
Hugs for Hailey

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**WARNING**
*WARNING* It has been brought to our attention that there is a person on Amazon.com who has a scam going where he/she is selling Hugs for Hailey shirts and trying to make a profit off our sick child. Please do NOT purchase anything anywhere other then the...

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Leukodystrophy Awareness
September is Leukodystrophy awareness month! We have decided to open our booster back up for anyone who would like to purchase a Hugs for Hailey t-shirt! These are the American Apparel super soft shirts! We also have NEW fun colors! You'll even get your shi...

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July 17th was Diagnosis Day.
Four years ago on this day we were in Salt Lake City at the Western Leukodystrophy Clinic. We had an appointment with a neurologist who had more knowledge of Leukodystrophy then the Neurologists in Las Vegas. I have wrote about this before so I won't repeat...

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2016 Hunter's Hope Family Symposium
The 2016 Hunter's Hope Family Symposium is right around the corner! At the end of July we will take Hailey to Buffalo so that we can spend time with other families who have been affected with Leukodystrophy.  The time that we spend at the symposium is so in...

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Hailey's Birthday!!
This weekend we were able to celebrate Hailey's 8th birthday! We had family, fun, and LOTS of surprises!! One being that for Hailey's Inside Out birthday party, Joy and Sadness came to party with us!! We had the party at a bowling alley and every time we he...

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Hugs for Hailey shirts NOW ON SALE!!!
It time for the Hugs for Hailey annual Booster T-Shirt sale!!! We have new colors & styles to choose from! Sizes run from Youth to 4XL. We've even lowered the price so that you can get multiple shirts as requested! Take a look, buy a shirt  (or 2) and let u...

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May is Hailey's Birthday Month!!!
Tomorrow will be the beginning of many many celebrations and surprises for Hailey!!! Tomorrow morning make sure to be up bright and early to be one of the firsts to snag your NEW Hugs for Hailey shirts!! They have been improved and we are offering so many g...

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We've decided on a theme
Hailey has decided that she wants an Inside Out birthday party! Of course just like last year the theme she picks is the hardest one to find! Last year it was Shopkins and that theme did not exist. Fast forward to this year and Shopkins are easy to find... ...

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Pacemaker Anniversary
Can you believe it has already been a year that Hailey has had her Pacemaker?? The whole thing is very surreal to me. I still find it hard to believe that my 7 year old has a pacemaker. In reality everything about Hailey is surreal, the leukodystrophy, the ...

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Hailey goes to Nascar!
I've blogged many times about how Hailey LOVES pretty much anything race related! She had a blast at the NHRA races, she ADORES Tanner Foust and Scott Speed and cheers them on at the Rally Car races, and next on her list was being able to go to a NASCAR rac...
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