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National Fragile X Foundation (Archive)
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Please visit our new Google + page. This page is being left up as an archive. All future updates will happen on our new page so please be sure to follow it if you are not already doing so. 
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Congratulations to the UC Davis MIND Institute—a member of the Fragile X Clinical & Research Consortium— for being named an Intellectual and Developmental Disabilities Research Center. Only a handful of neurodevelopmental centers hold that distinction, and we’re proud to call them our friends and colleagues in the Fragile X community.
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The executive order signifies a huge step in a long road toward the economic advancement of all people with disabilities.
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Fragile X got some mainstream exposure on Friday’s episode of General Hospital. One of the main characters, Samantha McCall, talks with her estranged adoptive dad. Trying to reconnect with his daughter, Samantha's Dad mentions that he’s been, "doing some research on the genetic disorder that her brother Danny was born with, fragile X syndrome." He goes on to say that, "It seems like they've made some progress in treating it.” He also made a donation in his name to the Port Charles Fragile X Foundation. 
Fragile X got some mainstream exposure on Friday’s episode of General Hospital. One of the main characters, Samantha McCall, talks with her estranged adoptive dad. Trying to reconnect with his daughter, Samantha’s Dad mentions that he’s been, “doing some research on the genetic disorder...
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Fragile X news, events and updates right at your fingertips! The NFXF app for Android and iPhone is here! http://app.fragilex.org
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Don't forget you can still make a difference by donating to our Annual Fund http://annual.fragilex.org
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Congratulations to Omar Gutierrez who swims for the El Dorado High School Aztecs in El Paso, Texas!

His mother, Sandra Piñon, told us, “When I found out my children had fragile X syndrome over 10 years ago, I felt lost and totally confused. I contacted NFXF and received the best support and information I could ask for! These days, he inspires and motivates me more than anyone in the world!”

http://www.ktsm.com/sports/autistic-swimmer-inspires-athletes-el-dorado
KTSM.com News Channel 9 is your source for News, Weather and Sports for El Paso, Las Cruces and Juarez.
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Have them in circles
106 people
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If you’re writing your child’s IEP, read and share these Educational Guidelines written and vetted by experts at the SCAC and FXCRC! http://ow.ly/vCAsQ
For years, education and special education services—including therapy, counseling and practices geared toward providing the “least restrictive environment”—have been the mainstay for children, adolescents and young adults with fragile X syndrome (FXS). While intervention literature is...
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In November 2013 Fragile X researchers led by MIND Institute Medical Director Randi Hagerman visited the Valle del Cauca District and the small town of Ricaurte, Colombia, which for years has been known to have a very high prevalence of individuals with intellectual disability and more recently this was found to be fragile X syndrome. The NFXF was along on this journey of discovery.
In November 2013 Fragile X researchers led by MIND Institute Medical Director Randi Hagerman visited the Valle del Cauca District and the small town of Ricaurte, Colombia, which for years has been known to have a very high prevalence of individuals with intellectual disability and more recently...
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We're down to the last two.... Today's Forward Thinking video features Ginger Stringer a mother from Colorado Spring, Colorado
"Though people are different, and though people with Fragile X have weird behaviors, they are all very similar." 
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There's still time, if you're interested in joining us for National Fragile X Advocacy Day, today is the last day to register. http://fxadvocacy.fragilex.org/
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One of our champions in Congress, Rep. Gregg Harper, has a special message for you about National Fragile X Advocacy Day!

If you're planning to join us for NFXFAD 2014 the last day to reserve room at the hotel and receive the group rate is Monday, February, 10.

http://youtu.be/xuRL6hQD7aQ
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People
Have them in circles
106 people
Deva Raj's profile photo
Louise Kontarines's profile photo
Gemma Solana's profile photo
Janet, Jenner & Suggs's profile photo
Brian Frimel's profile photo
Eric Welin's profile photo
Khrystal Davis's profile photo
Dana Dana's profile photo
Stacy Shepherd's profile photo
Contact Information
Contact info
Phone
(800) 688-8765
Email
Address
1615 Bonanza St. Suite 202 Walnut Creek, CA 94596
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Introduction
The National Fragile X Foundation has been committed since the organization was formed in 1984 to help families, spread awareness, find improved treatments, and support research leading to an eventual cure for all Fragile X-associated Disorders.

Mission


The National Fragile X Foundation unites the Fragile X community to:
  • Enrich lives through educational and emotional support
  • Promote public and professional awareness
  • Advance research toward improved treatments and a cure for Fragile X.
Company Overview

The National Fragile X Foundation (NFXF) was founded in 1984 to support individuals with fragile X syndrome (FXS), their families, and the professionals who work with them. Today, it is a comprehensive resource not only for FXS, but also the more recently discovered conditions of fragile X-associated tremor/ataxia syndrome (FXTAS) and fragile X-associated primary ovarian insufficiency (FXPOI). The organization offers a toll-free phone line and email support; education through an extensive website, social media, and other publications; and awareness activities throughout the country. It also organizes international conferences, funds scientific research, and leads legislative advocacy efforts in Washington, DC.