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Chiari & Syringomyelia Foundation
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Can you tell we're excited to kick off the 2016 #uniteatnight season? You can host an awareness walk in your hometown for #Chiari, #syringomyelia and related disorders. Learn how here: http://ow.ly/Y8nVx

#1millionin2016 #bethehope
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What does a ‪#‎seizure‬ really look like? Dr. Pavel Klein gives a really engaging lecture on what seizures do (and don't!) look like and how they might be mistaken for something like behavioral issues.
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Thanks to your donations and the best and brightest at +Georgia Tech College of Engineering, this  #golf  car prototype was sent the the US Patent Office to be reproduced and help kids with physical #disabilities  get involved in a sport they can enjoy for the rest of their lives!

Help support more projects like this by hosting a #uniteatnight  walk in your area, while raising #awareness  for #Chiari , #syringomyelia  and related disorders: http://ow.ly/WLcBt
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GRAMMY award winning singer/songwriter, Rosanne Cash, was unable to experience music, the "ultimate healer", for a brief time because of her #Chiari and #syringomyelia. Learn about her struggle, the symptoms she faces and the incredible resolve and determination she has to stay positive and hopeful.

"Maybe I love music more now because it was harder to experience through this veil of #chronicpain... I still have issues. But people live with a lot worse." Thank you, Rosanne, for sharing your story and inspiring #hope.
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Shop Amazon Smile today for #CyberMonday  and support #Chiari , #syringomyelia  & related disorder educational programs and research.

Shop, save, support CSF: http://smile.amazon.com/ch/26-1316274
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It's Veteran's Day. Did you know that you can support a movie about a little boy who starts a petition for peace to bring his brother Benjamin home from the military… AND help in the fight against #Chiari  and #syringomyelia  and related disorders?

Homelight Films has started a campaign to produce the movie and has agreed to donate 50% of each contribution to CSF in honor of Skyler Day, who plays Avery in the film. Avery is bound to a wheelchair in the film from the effects of CM & SM… and Skyler has had surgery for CM & SM in real life!

This would be a win for awareness and for all those brave men and women who put their lives on the line every single day for our freedom. #GetBetterSoon  
A narrative film for peace. A portion of the contributions will help fight Chiari & Syringomyelia. | Crowdfunding is a democratic way to support the fundraising needs of your community. Make a contribution today!
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Have them in circles
123 people
Mary Hardee's profile photo
Nekeidra Cromwell's profile photo
Frederickburg/Spotsylvania Ehlers-Danlos Syndrome's profile photo
Brigham and Women's Hospital's profile photo
Janet Greenley's profile photo
Heather Ritter's profile photo
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Problems of #cognition are beginning to become of interest to many physicians in the field, but like Dr. Grant mentions in his presentation, we're at the starting line and much more #research needs to be done!
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Last year, you raised $904,273.23 to benefit research, education and awareness programs for patients and families struggling with #Chiari , #syringomyelia  & related disorders. This year, we're poised to raise $1 million!

Help us raise #1millionin2016http://ow.ly/WLcBt
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Today is #GivingTuesday ! After the craziness of Black Friday and Cyber Monday, an entire day devoted to giving to causes that matter can feel great and bring us all back into the holiday season. Learn more: http://csfinfo.org/ways-give/givingtuesday

CSF is planning to keep the good feelings going all month by providing daily snippets of trivia, information and awareness to inspire people who may have never heard of #Chiari , #syringomyelia  and related disorders to   #give  and help advance research and education. …And you can help, too!
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"The majority of physicians either have never heard of [ #Chiari , #syringomyelia , #EDS  or other related disorders]. Or, because they are peculiar, they think [the disorders] must have some psychological basis." - Dr. Long.

Watch multiple experts from many fields of medicine-- from neurosurgery to immunology-- explain why treating the whole patient (not just their brain!) can help improve patient care.
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Drumroll, please… we have a big announcement… CSF's #uniteatnight  2016 is ready to roll! Help us raise awareness and funds for research and education that help patients with #Chiari , #syringomyelia  and related disorders by walking with us-- get this-- between the months of May through August! That's 4 whole months of awareness and support as we unite@night together to kick these disorders to the curb.

Get started and learn more: http://csfinfo.org/csf-unite-night/
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People
Have them in circles
123 people
Mary Hardee's profile photo
Nekeidra Cromwell's profile photo
Frederickburg/Spotsylvania Ehlers-Danlos Syndrome's profile photo
Brigham and Women's Hospital's profile photo
Janet Greenley's profile photo
Heather Ritter's profile photo
seaglass59's profile photo
Jan Grizzel's profile photo
Danielle Hitchcock's profile photo
Contact Information
Contact info
Phone
(718) 966-2593
Email
Story
Tagline
Advancing knowledge through research & education of CM, SM & related disorders.
Introduction
The Chiari & Syringoymelia Foundation is a national 501(c)(3) organization committed to disseminating accurate and current information about the treatments and best practices surrounding the management of Chiari malformation (CM), syringomyelia (SM), and related disorders.

Mission
To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related disorders.