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Chiari & Syringomyelia Foundation
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We love when our volunteers go the extra mile for the family and friends that they love! Check out Angelina and Zachary making a call to action for their friend, Lydia, who has #Chiari malformation!

You can join Lydia, Angelina and Zachary at their 2015 unite@night walk in Shorewood, IL by registering or donating to the cause at: http://unitenight.kintera.org/shorewood
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HELP CSF WIN A $25,000 GRANT FROM STATE FARM TODAY!

Thanks to one of our most dedicated "‪Chiari moms", CSF is one of a final 200 charities chosen out of 4,000 applicants to receive $25k… but now we need your help! Share this link and vote! You can vote up to 10 times each day for the next 3 weeks-- CSF is falling behind, so help us signal boost this cause and ensure that CSF can host more #ConsiderChiari  lectures and educate medical professionals and the public, alike about #Chiari , #syringomyelia  and related disorders!

Vote NOW: https://apps.facebook.com/sf_neighbor_assist/desktop/3/causes/1505079?hc_location=ufi
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Are you a college student or a recent grad, looking to become a leader in your local community in the fight against #Chiari  malformation, #syringomyelia , and related disorders? Become a CSF Young Adult Ambassador!

We're going to #YAAS  our way to change!

Request more information: info@csfinfo.org #CSFinfo
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The 2015 #uniteatnight video is out!

Unite with us this June as we help solve the puzzle that is #Chiari malformation, #syringomyelia, and related disorders such as #EDS, #hydrocephalus, #IIH, #POTS, #dysautonomia and many more!
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Watch Dr. Fraser Henderson and Dr. Claudiu Austin give an informal presentation and host an interesting discussion about #PANDAS, #paraneoplastic #limbic #encephalitis and other #autoimmunedisorders at the CSF Chapter meeting in Lanham, MD.
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Thanks to everyone who has ever participated in a unite@night walk, we can finally say that the over one million American families affected by #Chiari , #syringomyelia , #EDS  and more have started to boost #awareness  and understanding about their conditions… but there's still so much misinformation and so much to be done!

Fill out an application to host a #uniteatnight  walk/solo walk and get these disorders recognized in YOUR hometown! 

Learn more: http://csfinfo.org/csf-unite-night/
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Have them in circles
106 people
Dana Degraw's profile photo
Alisa Hoffmaster's profile photo
Craig Lambert's profile photo
Gnome Gewehr's profile photo
Nekeidra Cromwell's profile photo
Linda Hitchcock's profile photo
Peace McGinley's profile photo
Jorge Andres Tamayo's profile photo
Gina Melone's profile photo
 
On Monday, CSF, +Georgia Tech and E-Z-GO unveiled the first ever adaptable device that will allow children with differing levels of #paralysis  to play the game of #golf .


The device gives these children the opportunity to not only master a sport, but allows them to live an active, healthy lifestyle to improve their overall quality of life. Learn more: http://ow.ly/Ncq2o
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Watch Dr. Oliver Lawless give an interesting talk on #lupus and #neurodegenerative disease at the April CSF Chapter meeting in the greater Washington, DC area!

Visit our website for more #lectures of #Chiari, #syringomyelia and related disorders: http://csfinfo.org
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AMAZING VIDEO! +Eat Your Kimchi really gets #EDS  and living with #chronicpain . Thank you for bravely coming forward, raising #awareness  and explaining how to #cope  for the millions of people who have to manage their pain in silence around the world!
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Where will you #DineForACure ? At home? In a restaurant?

No matter where you dine out, be sure to spread #awareness  and knowledge about #Chiari , #syringomyelia  and related disorders! Contact us for more information on how to get started!
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#Chiari , #syringomyelia , #EDS , #dysautonomia … all these related disorders… it's hard to get a good diagnosis when your symptoms are puzzling… to you AND your doctor!

Join us as we #uniteatnight  this June to help spread #awareness  and raise important research funds! Learn more about how you can help others fill in their own medical puzzles: http://ow.ly/Is8aZ
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"It’s the desperate-for-relief look in her eyes and the way that every move she makes is an ordeal. Even the small groans and grunts she regularly emits are more agonizing in their restraint than a full-out scream would be."

What do you think about the movie #Cake  with Jennifer Aniston and its portrayal of someone suffering from #chronicpain ?
What starts off as a medical drama with a healthy nasty streak isn't able to resist slapping a bandage on all the badness in the end.
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People
Have them in circles
106 people
Dana Degraw's profile photo
Alisa Hoffmaster's profile photo
Craig Lambert's profile photo
Gnome Gewehr's profile photo
Nekeidra Cromwell's profile photo
Linda Hitchcock's profile photo
Peace McGinley's profile photo
Jorge Andres Tamayo's profile photo
Gina Melone's profile photo
Contact Information
Contact info
Phone
(718) 966-2593
Email
Story
Tagline
Advancing knowledge through research & education of CM, SM & related disorders.
Introduction
The Chiari & Syringoymelia Foundation is a national 501(c)(3) organization committed to disseminating accurate and current information about the treatments and best practices surrounding the management of Chiari malformation (CM), syringomyelia (SM), and related disorders.

Mission
To advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related disorders.