Most people who suffer from Chiari or syringomyelia can tell you: their conditions are NOT simple! There are many related disorders and co-morbidities. What's frustrating, is that there is no widespread #awareness
for any of these conditions.
CSF is dedicated to promoting awareness of #Chiari
and ANY related disorder: intracranial hypertension ( #IH
), Ehlers-Danlos Syndrome ( #EDS
, or #hydrocephalus
, just to name a few. That's why for the 2014 unite@night season, we want you to bring awareness to YOUR disorder!
CSF would like you to bring your colors to the walks, or join us in wearing black and gold to go #BlackAndGoldStrong
and represent Chiari malformation, syringomyelia and ALL related disorders!
Want to set up a #walk
in your local area? 2014 Application: http://ow.ly/sO1bO