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Christina Manning
24 followers -
Our daughter is case 1 in the world with SCAR9 and it's our mission to find more, and promote awareness!
Our daughter is case 1 in the world with SCAR9 and it's our mission to find more, and promote awareness!

24 followers
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What do you do when you have one of the rarest diseases around?
http://wapo.st/1RGSm9M
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What do you do when you have one of the rarest diseases around?
http://wapo.st/1RGSm9M
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Check out my new site!! It's finally up
http://www.ezramonet.com/
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Little things make BIG things happen~
The reason I decided to write this blog, is because not only are we hoping to find others out there who may have been diagnosed with SCAR9, but we are also looking for guidance and support. Even if you don't know anything about this, just reaching out and l...
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Hannah your a fighter, and you have taught me to fight, you have taught me to listen, and patience. I love your personality and who have become, and no matter what life throws your way your always smiling! You amaze me in every way! I love you to infinity and beyond my Angel!! Mai Milagros #flipagram ♫ Music: Baby Mine by Alison Krauss
Made with @flipagram
http://flipagram.com/f/bPlwZPsQ8P
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At this point I have nothing but hope to hold on to!
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deep and I love it.
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