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Anthony DeCarvalho
Works at Department of Treasury
Attended P.S. 86
169 followers|144,588 views
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Anthony DeCarvalho

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This was me in November after completing an 8 mile walk, ending on a hill overlooking the new LDS Temple here in Fort Lauderdale.  
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Well, we're just wrapping up a two-day visit to NIH. The workers, nurses, and doctors have all shown great resiliency despite the uncertainty of the government shutdown. My heart goes out to all the workers who are furloughed due to politics in DC.

Well, the researchers now have a clearer picture of what Simon has. Once the work is published, I will get into more details. For now, I'll say that there are others out there with Simon's condition, but he was the youngest to be treated for it. The doctors have a clearer understanding of why their current treatment has been working. We know that Simon's mutation was spontaneous, meaning neither Gabrielle and I are carriers. Naomi is not a carrier, either.

Simon can have kids someday, and since he will know what to expect, the child can be treated right away.

There are experimental drugs being worked on that can inhibit the mutated gene, but, for now, Simon can continue his course of medications and wait for a bone marrow transplant donor match.

The fact that we now know what is causing his immune deficiency is a 
The DeCarvalho family chronicles their travel and food experiences.
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Another exciting visit at Bascom Palmer for Simon. Nothing like Lego Batman 2 to pass the time ;-)
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A good cause.  Check it out.
Teams are made up of individuals. Without them and you, there is no team and there is no cure. Welcome to Vee's Team In Training home page. I have a mission-to help find cures and more effective treat...
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Anthony DeCarvalho

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I hope to see you there Friday night!
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I'll be there! =)
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Anthony DeCarvalho

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I am a Federal employee who works for the IRS, and I am being furloughed today. I have to check in for 4 hours today to cancel any appointments and tie up any loose ends. I’m sure most Americans do not shed a tear for me being out of work.

That’s fine. This post is not about me. This post is about my son.

Simon has an appointment scheduled at the NIH, in Bethesda Maryland, on Monday, October 7th. From what I heard on the news, 70% of NIH staff have been furloughed during the government shut down. This has a direct impact on the care he is scheduled to receive. Simon has a rare immune deficiency, and the NIH is helping us learn more about the disease and how to treat it.

If I miss work and lose a paycheck, that is bad enough, given that my job is the main source of income for our family of 4, but shutting down 70% of the NIH is highly irresponsible.

I do not care about the partisan bickering. I blame both sides for looking to score political points. If every politician on both sides gave an inch of compromise, a deal would have been struck months ago, and we would have a budget today.

Instead, patients like Simon may have appointments cancelled for the care they need, simply because of the political game. Our leaders in Washington DC should be ashamed of themselves.
The DeCarvalho family chronicles their travel and food experiences.
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Interesting hat.
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I wish these insurance companies would get their act together.
The DeCarvalho family chronicles their travel and food experiences.
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Update: the surgery went well!
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Simon enjoying his new scooter.
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Well another year has gone by and still we wait. I had not thought we would still be here in Fort Lauderdale. However, some wonderful things happened to us while we were waiting. We made some awesome ...
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People
In his circles
228 people
Have him in circles
169 people
Yaner Alonso's profile photo
Belott F's profile photo
Bryanna Herzog's profile photo
Charity Basic Needs's profile photo
Alexa M.'s profile photo
Orlando Remédios's profile photo
roslyn james's profile photo
Rey Villa's profile photo
Farrah Valcourt's profile photo
Work
Occupation
Accountant
Employment
  • Department of Treasury
    Accountant, present
  • JM Family
  • EDS
  • Lorien
  • Target
  • Boca LED Lights
Basic Information
Gender
Male
Relationship
Married
Apps with Google+ Sign-in
Story
Tagline
Revenue Agent, Microfilm Scanner, Blogger, Husband, Father, Friend. Juggling responsibilities since 1974.
Introduction
Accountant.  Musician.  Writer.  Husband.  Father.  Friend.  SxE.
Bragging rights
Graduated from FAU. Happily married with two wonderful children. Successfully survived career change from production manager to tax auditor.
Education
  • P.S. 86
  • John Adams High School
  • Flushing Christian School
  • FSU
  • FAU
Anthony DeCarvalho's +1's are the things they like, agree with, or want to recommend.
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The Church of Jesus Christ of Latter Day Saints
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Fort Lauderdale FL Temple - The Church of Jesus Christ of Latter-day Saints
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Fort Lauderdale FL Temple - The Church of Jesus Christ of Latter-day Saints hasn't shared anything on this page with you.

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I had the opportunity to visit the DeLand Ward. I enjoyed the sacrament meeting. The people were very friendly and warm. I look forward to visiting again, when I'm in the area.
Public - a year ago
reviewed a year ago
Our family has been attending church in Fort Lauderdale for almost two years. We've made many new friends, and are blessed by the holy spirit that can be help during worship and Sunday school.
Public - 2 years ago
reviewed 2 years ago
Awesome store with a great selection of Asian and Hispanic food and products. If you're interested in a store that looks real and is stocked with merchandise you won't find at Wal-Mart, this is the place for you. Great ethnic store!
Public - 4 years ago
reviewed 4 years ago
It's open now. Friendly staff.
Public - 4 years ago
reviewed 4 years ago
23 reviews
Map
Map
Map
Wonderful service. We were able to play with a couple of puppies. The store parrot is huge and beautiful!
Public - 4 years ago
reviewed 4 years ago
A quiet treasure.
Public - 4 years ago
reviewed 4 years ago