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ACCO - American Childhood Cancer Organization
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With so many new people "liking" our page each day, we want to say welcome and tell you a little bit about what we do.

We are the largest national, grassroots organizations standing at the forefront of the battle against childhood cancer. Founded by parents who themselves have faced this challenge, and joined by a national community of families and survivors, the ACCO is uniquely committed to improving the lives of children and families living with cancer and its long-term side effects, as well as bringing ever-greater awareness to the need for new, more effective treatments appropriate for cancer’s youngest warriors. From providing the highest quality resources designed for children and families, to coordinating local assistance to families in need, to leading national (and even international) advocacy campaigns for greater awareness and ever-more research, the ACCO is dedicated to giving every child facing childhood cancer a fighting chance at a healthy, happy future.


ACCO IS HERE TO HELP!
By clicking the link, you will find a comprehensive list of resources, tools, support networks, and specialized programs to help your family cope with the medical, emotional, and psychological repercussions of childhood cancer. These resources enable you to reach out and interact with other people who understand exactly what you are going through. Through sharing experiences and building a sense of community, we believe that even the most depleted reserves of strength and hope can be renewed.

http://www.acco.org/we-can-help/
American Childhood Cancer Organization - We Can Help
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Great news! Our very popular Medical Play Kits are now available for purchase on our store. They are listed at $30 for the kit by itself, or $35 as a set with a small "Cozy Port-a-Cat" stuffed animal included. For bulk purchases, they are $25 per kit and $28 with "Cozy Port-a-Cat" (the amount of the discount will be refunded following the purchase request as is the procedure with other discounts in our store). The quantity limit for bulk purchases is 50 kits.

Please note that the kits are still FREE (like all of our resources) to any child/teen who is or has been in treatment for childhood cancer. Please remember to send in your photos of your Warriors using their kits, or with any of our other resources, to share on our website and social media. Thank you!


To learn more about these kits, please visit our website: http://www.acco.org/we-can-help/for-kids/medical-play-kit/

To order the kit please use this order form: https://www.tfaforms.com/247470
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It's that time again! As we approach Childhood Cancer Awareness Month in September, we want to be sure everyone has their 2015 Go Gold teeshirts. This year, we are going to again feature the names of Childhood Cancer Warriors who have fought or are still fighting cancer.

This year, however, we have a new and improved way of collecting these precious names. We have created a submission form at http://s.acco.org/submitname (or by clicking the link). We will only be collecting names using this form to help streamline the process. If you have already added your child's name since our last project, there is no need to add the name again.


Please click on the link, fill out the information and then hit the big yellow "Sign Up" button and that's it! We are collecting names until the deadline of Wednesday, July 8, 2015. In order for families to be able to receive their shirts by September 1st, we have to keep this date firm. Any names submitted after July 8th, 2015 will be saved for our next project. Thanks for your understanding.

We are so excited to Go Gold this September for all our Warriors and Families! We can't wait to see how many names are submitted! Thank you!

http://www.acco.org/…/27/2015-go-gold-shirt-name-submission/

‪#‎GoGold‬ ‪#‎GoGoldShirt‬ ‪#‎ChildhoodCancer‬ ‪#‎EndChildhoodCancer‬ ‪#‎4KidsWithCancer‬
Please use this form to add your child's name to our 2015 Go Gold Shirt Project. Please use the "Custom Field 1" to add the name exactly as you want it to appear on the shirt. You may add, First, Middle and Last name, but we may have to remove middle names to allow room for every name submitted.
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It's that time again! As we approach Childhood Cancer Awareness Month in September, we want to be sure everyone has their 2015 Go Gold teeshirts. This year, we are going to again feature the names of Childhood Cancer Warriors who have fought or are still fighting cancer.
This year, however, we have a new and improved way of collecting these precious names. We have created a submission form at http://s.acco.org/submitname (or by clicking the link). We will only be collecting name using this form to help streamline the process.
Please click on the link, fill out the information and hit the big yellow "Sign Up" button and that's it! We are collecting names until the deadline of Wednesday, July 8, 2015. In order for families to be able to receive their shirts by September 1st, we have to keep this date firm. A new name collection form will be created and any names submitted after July 8th, 2015 will be saved for our next project. Thanks for your understanding.
We are so excited to Go Gold this September for all our Warriors and Families! We can't wait to see how many names are submitted! Thank you!
Please use this form to add your child's name to our 2015 Go Gold Shirt Project. Please use the "Custom Field 1" to add the name exactly as you want it to appear on the shirt. You may add, First, Middle and Last name, but we may have to remove middle names to allow room for every name submitted.
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As a ‪#‎ChildhoodCancerSurvivor‬ - "What was the biggest challenge that you have overcome with cancer?
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We are extending our ‪#‎ChildhoodCancerSurvivor‬ week to the end of the month! Please take moment to learn about this special survivor:

"I am a neuroblastoma survivor. I was diagnosed with stage 4 NB in January 1983, when I was just 15 and a half months old. My tumor was attached to my right kidney, extending to my left, and partially wrapped around my aorta. There were cancer cells in my lymph nodes too. More than a year later, in May 1984, after two major surgeries, chemotherapy, and radiation, I came down with viral encephalitis. Because my immune system was completely wiped from chemo, I could not fight it and the infection damaged my brain stem. It caused permanent damage, and it's very similar to cerebral palsy. I have mobility issues (can't walk without support), hearing loss in both ears, and a speech impairment. I also have scoliosis from the radiation I had. Today, I am 33, and a childhood cancer activist. I am horrified by the fact that childhood cancer is so underfunded and that it is the number one cause of death by disease in children.


I run a page called Pediatric Cancer Awareness on here too, with a dear friend, whose 7 year old daughter is an acute lymphoblastic leukemia survivor. I have found that most people respond better there than if I had just posted on my personal page. We post about kids needing prayers and anything and everything that has to do with childhood cancer. I have gotten your awareness shirts for September 2 years in a row now. I love what you do and how you help!

https://www.facebook.com/PediatricCancerAwareness113"

We have received so many amazing stories, photos and posts that we want to be sure to share all of them. When you share your photos and stories, please share the answers to some of the questions below:
- "What was the biggest challenge that you have overcome with cancer?
- "What was the gift that having cancer taught me or my family?
- "What did cancer take from me or my family?"
- "What is my wish for other kids like me battling cancer?"
We would also love to hear what your plans are to celebrate your survival this month!

We will be posting what you share with us on our blog, social media and on the Childhood Cancer International's new Facebook page dedicated to Survivors at www.facebook.com/ChildhoodCancerSurvivorJourneys

For more information please visit this link: http://www.acco.org/…/celebrate-international-childhood-ca…/
Danielle's a stage IV neuroblastoma survivor, and Shannan's the mother of a leukemia survivor. We...
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We have had a lot of people ask when the 2015 Go Gold shirts will go on sale. We are looking for a sale date to start around the July 13th and continue for 3 weeks. It will depend on how many names we receive and the design, but our intentions are to have everything completed and ready for ordering, processing and delivery to occur before Childhood Cancer Awareness month in September. To submit your child's name, please click on the link below. Thank you! http://www.acco.org/…/27/2015-go-gold-shirt-name-submission/
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In response to The White House turning color in support of the Supreme Court decision favoring LGBT marriage, ACCO reached out to our contacts in the White House with the request that it be turned gold in September. ACCO respects the following response that we just received back from the White House office an hour ago. As opportunities arise and policies change, we will continue to reach out to the White House on behalf of our childhood cancer community.

"Hello Ruth,

Thank you very much for your email and for the positive support for the LGBT community.


We have asked about lighting the WH up on behalf of requests that have come in, and for pediatric cancer specifically. As I'm sure you know, many diseases and advocacy groups have a color they use for awareness and the number of requests have been very high since 2009. Unfortunately a policy was set that we would not be able to add additional annual light ups. Bill Clinton and George Bush each chose one during their Administrations; breast cancer and HIV. The White House kept those two on behalf of past Administrations. The LGBT lighting for the Supreme Court decision was a one time historic event so the policy was lifted for that one time, but won't be annual.

We have asked if the policy will change in the future and will continue to pursue it. Thus far it seems as though adding an annual lighting, or choosing only some of the many awareness colors out of the requests we've received is something we won't be able to do, at least for now.

Thank you again, and please be in touch. We'll absolutely keep you posted if anything changes.

The White House"
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It is with a heavy heart that we have learned that sweet Brooke took her last breath today after fighting childhood cancer with an elegance and grace that only Brooke could accomplish. She will be deeply missed by the many people she inspired. Fly high sweet Angel. heart emoticon

From Brooke's page: "Our beautiful sweet blossom has left us today to go be with Jesus. God bless each of you who so selflessly loved and prayed and cared for Brooke and our family during the years of her brave battle. She left peacefully and without pain this afternoon as God mercifully took her home while we held her hands and literally felt her spirit move through us like a soft breath of air on her way to heaven. Psalms 146 was read aloud to her just shortly before she decided it was time to let us go and we know she would want you also to read it and glorify God in that memory shared in love and prayer with our beyond extraordinary amazing daughter, Miss Brooke Elizabeth."


https://www.facebook.com/brookesblossoms
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A very special ‪#‎ChildhoodCancer‬ Warrior and her family is in need of some thoughts and prayers tonight after their long battle against brain cancer. Please help us send lot's of love to Gigi and her family during this very difficult time. From Gigi's page today:

"We got home from the hospital wednesday evening and her body was almost immediately shutting down. Hospice came just about an hour and a half after we arrived. The pastor was here last night and at 5 am to pray. She was struggling to breathe her back hurt horribly. She was screaming out in pain. She has had morphine and other medicine to help make her be at peace.


Gigi is dying. Her heartrate is was fast , then had slowed, then fast again all while being irregular. Her body was struggling for a few hours around 3-5:30. It's is still struggling, but a calm. She has turned gray with chalky lips. She still looks very much at peace though.

Gigi told me she was fighting for me because she loved me. I told her was okay to let go. She joked up to the very end when she pulled her oxygen out and said she was done and going to rest now. It won't be long before she takes her last breath. My sweet love!

Please send lots of prayers as the next few hours and days will be the hardest thing I will ever endure. Do know Gigi has controlled it even to the end."

https://www.facebook.com/teamgigi55
7 yr. old Gianna Carrera is a vibrant, active "girly girl" who loves lip gloss and playing dress...
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We have a very brave, super stylish, ‪#‎ChildhoodCancer‬ Warrior who needs to know that we are all thinking about her, especially now as she fights for her life! You may remember sweet Brooke Hester when we shared the story about her connecting with country music singer Miranda Lambert during a concert, or from the beautiful "Blossoms" she always so perfectly wears.

Please read the latest update about Brooke below and be sure to keep her in your thoughts and prayers. Thank you. heart emoticon

"Brooke couldn't bake her Daddy real cookies so she made him a special shark one on her iPad for him to "eat" for a Father's Day gift from her heart.

Many people may or may not know, but Brooke is a huge Audrey Hepburn fan... not of her as the actress, but of the woman who overcame obstacles and became a driving force for the betterment of people and children worldwide.

nothing is impossible
the word itself says
I'm possible
~Audrey Hepburn

Brooke loves to remind us of this quote often. She could barely walk today with terrible abdominal and leg/ankle swelling from fluid retention (the worse we have ever seen even with red stretch marks forming on her swollen knees) and yet when it came time for family to leave she wanted to escort them from her room at the back of the hospital floor all the way to the elevator. When she got back, she told us with a huge look of pride and a soft smile on her face, "that was a lot of work, but it was worth it!!"

This child full of life and grace and hope is so beyond resilient and strong it is unbelievable. She finds solace and peace going out to the hospital room balcony and letting the warm night breeze whisper through her soft short curls that have slowly returned after so many years and hair losses.

Although her internal bleeding in her stomach and intestines and some in her nose has continued, it is certainly much less each day and we know she is being carefully monitored and cared for by the kids cancer physicians here. Her port infection cultures are coming back negative and they reduced her down to one antibiotic now which we hope and pray will give her ailing kidneys some reprieve as well as spare her port and keep her out of cardiac surgery for a new line placement. They have started her on albumin and also given her lasik now to help her fluid retention and swelling issues and every day family has nonstop warmed our hearts and filled our tummies with wonderful meals and lots of love.

We feel safe here.

But we also know this is only a temporary solution for Brooke. Should she miraculously heal from her cancer despite being off therapy during this healing time for infection and bleeding, she would still need more services to help her body get back on track. Should her cancer progress being off therapy to help her heal, then we may not know how much time we have left with her at all.

But what we do know is that right now Brooke is safe, happy and comfortable and so blessed to be able to spend Father's Day with her strong and courageous man of faith, her one and only amazing daddy, and without the love and support in our lives this might not have even been possible. We also were blessed to have my daddy here today for a few hours as on his special day, and he even brought US a delicious lunch. What a blessing to have my daddy here with us along with other daddies like Uncle Casey and Brooke's Great Uncle Mark and countless other special family members who have come by since Brooke's hospital admission here, even a special cousin from the Carolinas flew in!

Brooke and Audrey are right. Nothing is impossible.... through God who makes all things possible and brings eternal hope through salvation.

Thank you for your continued prayers for strength, peace and always... hope."

Read more updates here: http://www.gofundme.com/xafl9s

Visit Brooke's Blossoming Hope for Childhood Cancer Foundation Facebook page here: https://www.facebook.com/BrookesBlossomingHope

Visit her website here: http://www.brookesblossoms.org
Brooke is 500 miles from home. As long as the only pediatric oncology team in town is there she can never go home again as long as she is on treatment. So right now after 4 years and 7 months of watching her battle this disease, we have no chioice but to be living with family 500 miles from dadd...
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We are thinking about all Dads today, wishing them well wherever they may be. We are also sending lots of love to our "Cancer Dads" on this day.

"Each year, 15,000 of us unwillingly join the all-too-non-exclusive club that is being a “Cancer Dad.” As part of initiation into this club, you learn a new language full of medical terms and acronyms; you’re tasked with finding strength that can’t be found in a gym; you mock the things that used to keep you up at night; you feel helpless; and you learn what it’s like to have given life to your hero."

Read more: http://www.dedicatedtoallbetter.org/cancer-dad-thank-you/
Our journey began when Cruise was diagnosed with a malignant rhabdoid tumor. At just 17 months old, he was given an 11 percent chance of survival.
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People
Have them in circles
33 people
mandy walker's profile photo
Mesothelioma Help's profile photo
Giulia SIOPE's profile photo
MaYee A's profile photo
Sarah Kathryn Frey's profile photo
Children's Cancer Recovery Foundation's profile photo
ICM, Institut du Cancer de Montpellier's profile photo
The Nicholas Conor Institute's profile photo
Carla Riley-Wood's profile photo
Contact Information
Contact info
Phone
855-858-2226
Story
Tagline
Because Kids Can't Fight Cancer Alone
Introduction

American Childhood Cancer Organization ( ACCO ) began in 1970 by a group of parents whose children had been diagnosed with cancer. They came together to lobby for more research, and to support each other through the diagnosis and treatment of this life threatening disease at a time when very few children survived. Today, ACCO is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer and their families. We are strong advocates for our families in Washington D.C., we produce the highest quality materials on childhood cancer, and we have over 40 local affiliate organizations across the country providing direct services to the families in their communities. We are:

  • Families of children and adolescents who are in treatment or have been treated for cancer
  • Children and adolescents who are currently fighting cancer
  • Survivors of childhood and adolescent cancer
  • Bereaved families
  • Spouses, friends and family of long term survivors
  • Health care professionals and educators who work with cancer patients and survivors